|About the IETF|
|Medical Advisory Board|
IETF empowers individuals to regain control of their lives, by providing educational information, treatment options and coping skills.
IETF actively advocates for greater ET awareness and education at every level—from health care providers to government officials.
IETF funds scientific research to find more effective treatments and a cure for ET.
IETF has support groups across the globe to provide inspiration and fellowship among those living with ET.
A single voice is seldom heard, but a thousand voices shake the world.
||About the IETF
|The International Essential Tremor Foundation (IETF)
Founded in 1988 as a 501(c)(3) non-profit membership organization, the IETF is guided by an executive board of directors, a medical advisory board and an executive director with a staff of four. The organization's membership consists of patients, physicians, educators, health care workers, parents, relatives, friends and volunteers.Our Mission
The IETF funds research to find the cause of essential tremor (ET) that leads to treatments and a cure, increases awareness, and provides educational materials, tools, and support for healthcare providers, the public, and those affected by ET.
We are committed to providing an environment that is free from discrimination because of race, color, religion, creed, national origin, ancestry, disability, gender, gender expression, sexual orientation, age or military status, in any of its activities or operations.
The IETF welcomes all people who share in our mission.
Awareness and Support
The IETF mails or emails a free information packet about ET upon request, maintains an updated listing of physicians specializing in ET, and assists with forming and maintaining ET support groups. In addition, the IETF conducts several free educational events in cities across the United States annually, and an annual research and awareness campaign that runs in conjunction with the organization's largest fundraising activity, Tulips for Tremors, and additional specialized awareness campaigns.
Every year, the IETF also funds basic research into the cause(s) of ET. Grants are awarded to established scientists whose primary interest is tremor disorders. The IETF funds this program in the hope that these scientists will collect sufficient published data to help them qualify for future federal funding that will lead to better treatments and a cure.
IETF members receive three issues per year of the member magazine, Tremor Talk. Articles are written for non-medically trained persons and discuss recent advances in research, coping techniques and topics of general interest to those with ET. Medical and research articles are written by physicians and researchers who work with patients with ET and/or study ET in laboratories.