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IETF empowers individuals to regain control of their lives, by providing educational information, treatment options and coping skills.
IETF actively advocates for greater ET awareness and education at every level—from health care providers to government officials.
IETF funds scientific research to find more effective treatments and a cure for ET.
IETF has support groups across the globe to provide inspiration and fellowship among those living with ET.
A single voice is seldom heard, but a thousand voices shake the world.
||Carson and His Shaky Paws Grampa
Innovo Publishing LLC released Carson and His Shaky Paws Grampa, Book 1 in the Shaky Paws Grampa series. Shaky Paws is a story about the relationship and love between a seven-year-old boy and his grandfather who has Parkinson’s disease and essential tremor. This book is available now in the U.S. and internationally in hardback, paperback, Apple iBook, Amazon Kindle, Barnes and Noble Nook, and Google Android editions.
Both the author and illustrator Alison Paolini live with Parkinson’s disease (PD) as do an estimated 6 million people worldwide, with 50,000–60,000 new cases being diagnosed each year in the U.S. alone. The author—and approximately 10 million other Americans—also lives with another movement disorder called essential tremor (ET).
Carson and His Shaky Paws Grampa, Book 1 in the Shaky Paws series, is designed to help parents and grandparents comfortably talk about the initial symptoms of PD and ET and address common questions and concerns children may express. This loving story blends well with Paolini’s charming watercolor illustrations and is written with words simple enough for a child to understand. Based on the author’s personal experience with Parkinson’s and ET, Hall’s approach to this important topic is gentle and effective in reducing concerns with children and younger family members and friends.
The book not only deals with symptoms of PD and ET, but it touches on an innovative and effective treatment the author successfully underwent called deep brain stimulation (DBS). DBS has resulted in a remarkable quality of life improvement for the author, which he writes about in his book. This first book will be followed by additional titles that gently explore the more advanced stages of PD.
Hall will be showcasing and signing his book at the 6th Annual Parkinson’s Disease Conference in Atlanta, Georgia. The conference begins October 14 and ends on October 16. A portion of the proceeds from the sale of this book will be donated to support Parkinson’s and essential tremor
research and awareness.
Carson and His Shaky Paws Grampa has been enthusiastically endorsed and supported by a number of Parkinson’s and essential tremor research and philanthropic organizations including the following:
“Wonderful story. So warm, thoughtful, and heartfelt. Loved it! A must-read for anyone with ET or PD.” —Catherine S. Rice, Executive Director, International Essential Tremor Foundation
“. . . a charming story that provides helpful guidance to PD patients for answering their
grandchildren’s innocent questions.” —Margaret Anne Coles, Program Manager, Muhammad Ali Parkinson Center/Barrow Neurological Institute
“. . . a fabulous book with remarkable illustrations.” —Cheryl Siefert, Executive Director, Parkinson Association of the Rockies
“Great story that touches on DBS surgery and its dramatic positive effects.” —Ben Petrick, former Rockies/Tigers baseball player Parkinson’s patient who has had DBS surgery
“. . . demystifies Parkinson’s for the youngsters in your family.” —Joel Havemann, retired Los Angeles Times editor, author of A Life Shaken: My Encounter with Parkinson’s Disease
About the Author: Kirk Hall lives in Colorado with his wife of 42 years, Linda. Their two sons and their families live nearby. He was diagnosed with ET in 1991 and PD in 2008 and had successful DBS surgery for tremor stemming from both conditions in 2011. Kirk has participated in a variety of clinical research studies at the University of Colorado hospital and the National Institutes of Health in Bethesda. Kirk and Linda are active members in the Parkinson’s Association of the Rockies. He is also a member of TeamFox. Their active lifestyle includes skiing, camping, hiking, golf, tennis, workouts at the local recreation center, bike riding, babysitting, watching grandkids play sports, and more. They are also involved in the life of their church where Kirk is a member of the choir. He recently tried ziplining in Costa Rica and loved it!
About the Illustrator: Alison Paolini lives in Northern California where she enjoys a multitude of creative activities. She studied acting and set design in New York and fine art with illustration at California State University at Northridge. She also taught “Drawing On Your Imagination” for eight years at The Paradise Art Center and shows her work at local art galleries. Alison is a published illustrator and poet. She is an active member of the Parkinson’s Association of Northern California. She and her husband have two children and three grandchildren. They have enjoyed living in and visiting many parts of the world. Alison was diagnosed with Parkinson’s in 1999 and believes firmly that staying creatively active is crucial in coping with the disease.