Clinical Research

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New! Research Study Announcement Great Lakes NeuroTechnologies Tackles Continuous Monitoring of ET with Launch of Multi-Site Clinical Kinesia Study - Learn more.

Statistical Mapping of the Brain in Progressive Supranuclear Palsy, Essential Tremor, Parkinson�s Disease, Parkinsonism, and REM Behavior Disorder - Learn more.

Database of patients interested in clinical trials involving Focused Ultrasound Surgery for Movement Disorders
FUS TRIAL PRESCREENING - University of Virginia IRB#16034

Dr. Jeff Elias at the University of Virginia Health System is the principal investigator of one or more clinical trials investigating the use of Focused Ultrasound Surgery in Movement Disorders. In order to more efficiently communicate with patients who are interested in these trials, and to conduct an initial pre-screening for these trials, the study team has developed a database. Patients 18 years or older with a movement disorder are invited to be listed in the database. To participate, patients complete a questionnaire, either online or by mail, regarding clinical history that is relevant to clinical trial participation. Once your contact information is in the database, you will receive information about clinical trials as they become available. Please note that the initial studies are small in size. Also, enrollment may not be open at this time.

If you would like to be part of this database, go to: https://www.healthsystem.virginia.edu/focusedultrasoundtrial/ .

For more information please contact Johanna Loomba, Department of Neurosurgery study coordinator, by email at FUSbrain@virginia.edu. You may also contact us by phone at 434-243-1435, but email is encouraged.

Beth Israel Deaconess Medical Center. Learn more.

1-octanol ET Research Study - Bethesda, MD. Learn more.

Neuroimaging Study of Essential Tremor - Miami, FL. Learn more.

BYU Upper Limb ET Research Study - Provo, UT - Learn more.

ST101 Essential Tremor Research Study - West Los Angeles VA Medical Center - Learn more.

Genetics of ET Columbia University Study - Learn more.

DBS System Study, St. Jude - Learn more.

Brain Mechanisms of ET Study, University of Miami Health System, Miami, Florida - Learn more.

Pregabalin (Lyrica) Study - Springfield, Illinois and Tampa, Florida locations - Learn more.

Brain Tissue Donation, ET Centralized Brain Repository, Columbia University, New York City, New York - Learn more.

MORE RESOURCES

Center for Information and Study on Clinical Research Participation (CISRP) www.ciscrp.org If you are thinking about joining a clinical study, learn how to evaluate that study, what questions to ask before participating, and what your rights are as a participant.
ClinicalTrials.gov - www.clinicaltrials.gov This site provides patients, family members and the public with easy access to free information on clinical studies for a wide range of conditions including ET.
National Institute of Neurological Diseases - www.ninds.nih.gov This site provides the most recent biomedical research publication concerning human subjects.
IETF listing of clinical trials currently recruiting ET patients These studies have requested that the IETF actively assist in recruitment. Find a study in your area and join the search for the causes of ET.
Make a donation to ET research - Donate now Support the IETF mission of funding basic research in finding the causes of ET.
Become an IETF member! Stay informed about the latest information on ET research and medication, learn coping tips, and more. Members receive two copies of the member magazine Tremor Talk and three copies of the research newsletter The Scoop on Tremor annually.

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