About the IETF
Founded in 1988 as a 501(c)3 non-profit membership organization, the International Essential Tremor Foundation (IETF) is guided by an executive board of directors, a medical advisory board and an executive director with a staff of three. The organization consists of patients, physicians, educators, health care workers, parents, relatives, friends and volunteers.
The mission of the International Essential Tremor Foundation (IETF) is to provide global educational information, services and support to children and adults challenged by essential tremor (ET), to their families and health care providers, as well as to promote and fund ET research.
Board of Directors
The Board of Directors is the governing body of the IETF. Current members include:
Kelly Lyons, PhD – President
Peter LeWitt, MD – Vice-President
Russ Rosen, MSW – Secretary/Treasurer
Shari Finsilver – Past President, Director
Edward M. Block, PhD – Director
Mitch Fiser, CPA, CFP – Director
Patrick Reidy – Director
JoDene Coleman – Director
Patrick McCartney – Executive Director
Medical Advisory Board
The IETF Medical Advisory Board is comprised of physicians and researchers who specialize in essential tremor and other movement disorders. They advise the organization and review medical materials.
Each semester, the IETF will award up to four $500 scholarships to qualified post-high school students of all ages, to lessen the burden of higher education. The scholarship can be used for supplies, books or tuition at licensed, accredited institutions of higher education (including trade schools) and are paid directly to the educational institution.
These reports chart our progress toward the mission of the Foundation. The IETF fiscal year runs from April 1 through March 31.
GuideStar is the world’s largest source of information on nonprofit organizations.The IETF is committed to transparency and being a good steward of the funds donated to our cause. Please review our Guidestar listing to see our financial reports, form 990s, and other important information.
We are proud to be a member, participant and/or partner of the following organizations:
American Brain Coalition | CIBR | Coalition for Clinical Trials Awareness | Coalition for Health Funding | Community Health Charities | Cures Acceleration Network (CAN) | Genetics Alliance | Midwest Neurological Coalition | Global Genes RARE Foundation Alliance | National Institute of Neurological Disorders and Stroke | National Council of Nonprofits | One Mind | Tremor Action Network