About the IETF

2014 Top-rated nonprofits and charitiesGKCCF ReviewedFounded in 1988 as a 501(c)3 non-profit membership organization, the International Essential Tremor Foundation (IETF) is guided by an executive board of directors, a medical advisory board, and an executive director with a staff of three. The organization consists of patients, physicians, educators, health care workers, parents, relatives, friends, and volunteers.

Our Mission
The mission of the International Essential Tremor Foundation (IETF) is to provide global educational information, services, and support to children and adults challenged by essential tremor (ET), to their families and health care providers, as well as to promote and fund ET research.

Download our brochure

Board of Directors

The Board of Directors is the governing body of the IETF. Current members include:

Kelly Lyons, PhD – President

Peter LeWitt, MD – Vice-President

Russ Rosen, MSW – Secretary

Mitch Fiser, CPA, CFP – Treasurer

Shari Finsilver – Past President, Director

Edward M. Block, PhD – Director

Patrick Reidy – Director

JoDene Coleman – Director

Paul Rodden – Director

Heath Steele – Director

Patrick McCartney – Executive Director

Medical Advisory Board

The IETF Medical Advisory Board is comprised of physicians and researchers who specialize in essential tremor and other movement disorders. They advise the organization and review medical materials.

Review the members

IETF Scholarships

Each semester, the IETF will award up to four $1,000 scholarships to qualified post-high school students of all ages, to lessen the burden of higher education. The scholarship can be used for supplies, books or tuition at licensed, accredited institutions of higher education (including trade schools) and are paid directly to the educational institution.

Learn more

Annual Reports

These reports chart our progress toward the mission of the Foundation. The IETF fiscal year runs from April 1 through March 31.

2006  2007  2008  2009  2011  2012  2013  2014  2015  2016


logo-exchange-gold_128x94GuideStar is the world’s largest source of information on nonprofit organizations.The IETF is committed to transparency and being a good steward of the funds donated to our cause. Please review our Guidestar listing to see our financial reports, form 990s, and other important information.

Learn more


We are proud to be a member, participant and/or partner of the following organizations:

American Brain Coalition | CIBR | Coalition for Clinical Trials Awareness | Coalition for Health Funding | Community Health Charities | Cures Acceleration Network (CAN) | Genetics Alliance | Midwest Neurological CoalitionGlobal Genes RARE Foundation Alliance | National Institute of Neurological Disorders and Stroke | National Council of Nonprofits | One Mind | Tremor Action Network