About the IETF

2014 Top-rated nonprofits and charitiesFounded in 1988 as a 501(c)3 non-profit membership organization, the International Essential Tremor Foundation (IETF) is guided by an executive board of directors, a medical advisory board and an executive director with a staff of three. The organization consists of patients, physicians, educators, health care workers, parents, relatives, friends and volunteers.

Our Mission

The IETF funds research to find the cause of essential tremor (ET) that leads to treatments and a cure, increases awareness, and provides educational materials, tools, and support for healthcare providers, the public, and those affected by ET.

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Board of Directors

The Board of Directors is the governing body of the IETF. Current members include:

Kelly Lyons, PhD – President

Peter LeWitt, MD, Vice-President

Russ Rosen, MSW, Secretary/Treasurer

Edward M. Block, PhD, Secretary

Shari Finsilver, Past President

Medical Advisory Board

The IETF Medical Advisory Board is comprised of physicians and researchers who specialize in essential tremor and other movement disorders. They advise the organization and review medical materials.

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IETF Scholarships

Each semester, the IETF will award up to four $500 scholarships to qualified post-high school students of all ages, to lessen the burden of higher education. The scholarship can be used for supplies, books or tuition at licensed, accredited institutions of higher education (including trade schools) and are paid directly to the educational institution.

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Spirit of Hope Award

Each year, the Shari Finsilver Spirit of Hope Award is presented to the person that embodies Shari’s spirit and commitment to combating ET, supporting the IETF, and spreading hope to those with ET and their loved ones.

2012 – Dr. Paul Donohue

2011 – Shari Finsilver

Annual Reports

These reports chart our progress toward the mission of the Foundation. The IETF fiscal year runs from April 1 through March 31.

2006  2007  2008  2009  2011  2012  2013

Affiliations

We are proud to be a member, participant and/or partner of the following organizations:

American Brain Coalition | CIBR | Coalition for Clinical Trials Awareness | Coalition for Health Funding | Community Health Charities | Cures Acceleration Network (CAN) | Genetics Alliance | Midwest Neurological Coalition | National Institute of Neurological Disorders and Stroke | National Council of Nonprofits | One Mind