For Healthcare Providers
The IETF depends on healthcare providers and physicians who specialize in ET to help those affected better understand their condition. By partnering with the IETF, we can provide your patients with a wealth of quality information and support … all at no cost to you.
Movement Disorder Neurologists Listing
To be listed on the IETF website, please complete the form below. Submissions will be reviewed prior to listing. If you have questions, please contact the IETF at 913.341.3880.
Free Patient Information
Please download the following materials to help educate your patients about their essential tremor:
IETF General Brochure – General information about the condition and mission of the IETF
Patient Handbook – Helps patients understand all the different aspects of their condition–from the diagnosis process to treatment options
Essential Tremor vs. Parkinson’s Disease – A simple tool that explains the differences between the two conditions
Tremor Disorders in Children – A guide for healthcare professionals
Children with ET – A guide for parents, teachers and other caring adults
Surgical Options – Learn more about your options and what to ask your doctor
Brain Tissue Donation: A Legacy of Love – How patients can donate brain tissue in order to further essential tremor research
Glossary of Common Terms – An alphabetical listing of common words, terms and procedures associated with essential tremor
Request Patient Information
Healthcare providers can order quantities of the education materials listed above from the IETF at no charge. Although all of our education materials are free for healthcare providers, please consider making a donation to help offset our shipping and handling costs.
IETF ET Research Grants
In order to be considered for an IETF Research Grant, please review the materials and complete the application below. The IETF only seeks proposals that address the nosology, etiology, pathogenesis, or treatment of essential tremor, or other topics relevant to essential tremor. Concise, clearly written proposals that are hypothesis-driven have the best chance of being funded.
AZ Brain Bank
The Brain and Body Donation Program (BBDP) is an autopsy-based, research-devoted brain bank, biobank and biospecimen bank that derives its human donors from the Arizona Study of Aging and Neurodegenerative Disease (AZSAND), a longitudinal clinicopathological study of the health and diseases of elderly volunteers living in Maricopa county and metropolitan Phoenix, Arizona. The BBDP studies their function during life and their organs and tissue after death. To date, they have concentrated their studies on Alzheimer’s disease, Parkinson’s disease, heart disease and cancer. They have also banked brain tissue from 76 subjects diagnosed with essential tremor during life. They share their banked tissue, biomaterials and biospecimens with qualified researchers worldwide. Visit the Brain Bank website for more information.
Clinical Differentiation of Essential Tremor and Parkinson’s Disease
Authors: Robert Fekete and Jin Li
Publication Date: 29 Apr 2013
Type: Case report Journal: Clinical Medicine Insights: Case Reports
Citation: Clinical Medicine Insights: Case Reports 2013:6 67-74
AAN Practice Parameters
Oct 2011 – Updated Guideline on Essential Tremor Published by AAN
An updated evidence-based guideline published by the AAN shows that certain drugs can help improve tremor in people with essential tremor (ET), but not all people with the disorder will be able to tolerate the drugs or find improvement in their symptoms. The guideline was published online ahead of print on October 19, 2011, and in print in the November 8, 2011, issue of Neurology®.