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home » hero constellations
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Hero Constellations
A star can be named for just about anyone or any group, and some constellations have been designed with a particular group in mind. The following are suggestions of whom a star could be named, but it is by no means exhaustive of all possibilities!
- Loved ones who are affected by essential tremor;
- Family and friends who have served or are serving in the armed forces;
- A person who has died, such as a parent or grandparent, for whom you wish to create a memorial;
- A child who holds a special place in your heart;
- A teacher who has inspired your life.
- A pet (cat or dog) that you love.
When you choose a star you are also choosing a package. Packages provide varying amounts of space for text, and photographs. The amount of space increases with the size of the corresponding donation.
 White Star Package -
$100 donation includes space for:
- Name of star - (person or persons being honored) - One line up to 30 characters.
- Star Date (The date the donation is processed).
- Donor name - One line to 30 characters.
 Yellow Star Package -
$250 donation includes space for:
- Name of star - (person or persons being honored) - One line up to 30 characters.
- Star Date (The date the donation is processed).
- Donor name - One line to 30 characters.
- Phrase or sentence up to 60 characters in length.
 Silver-Blue Star Package -
$500 donation includes space for:
- Name of star - (person or persons being honored) - One line up to 30 characters.
- Star Date (The date the donation is processed).
- Donor name - One line to 30 characters.
- Phrase or sentence up to 60 characters in length.
- Photograph.
 Red Star Package -
$1,000 donation includes space for:
- Name of star - (person or persons being honored) - One line up to 30 characters.
- Star Date (The date the donation is processed).
- Donor name - One line to 30 characters.
- Phrase or sentence up to 120 characters in length.
- Photograph.
- In addition, a membership in the IETF’s Presidents Club and
acknowledgement in the IETF’s quarterly newsletter, Tremor Talk.
 Constellation Package -
$2,500 donation provides the opportunity to honor a special group of people, including family, military unit, school friends, etc. Includes
- A special constellation designed to your specifications using up to 30 stars of mixed colors.
- Each star will have:
- Name of star
- Star date
- Donor name
- Photograph
- Message up to 120 characters in length
- Membership to the IETF Presidents Club.
- Acknowledgement in Tremor Talk.
- Tremor Talk and website personal story about the constellation.
When ordering the constellation package, please contact the IETF office at 1-888-387-3667 for specifics in submitting information and pictures.
How to name a star:
- First choose constellation by clicking on it at the top of this page, and locate a star that is available to be named.
- Click on this star, and a donation form will open.
- Enter the information about the star, and upload a JPEG picture if included in your star package. If you don’t have a JPEG or don’t know what a JPEG is, please mail us a copy of your photograph. Once you click on the star, the donation page will remember which star is yours.
- Enter your payment information.
- Click the submit button.
- If you choose, you can print the order form and submit by mail.
Guidelines:
- There will be a minimum of 7 to 10 business days between the time you name a star and make a donation until it is viewable on the website. This gives the IETF time to review and process all submissions.
- The IETF reserves the right to decline a submission that is considered, by the IETF, to be inappropriate.
- Specific star locations cannot be guaranteed. The IETF reserves the right to assign an available star of the chosen package level from within the chosen constellation.
- One star can be named for one and two persons, (i.e. John Smith or John and Jane Smith) or can be named for a group (i.e. Kansas Troop 24).
For more information on naming a star on The Hero Constellations of the IETF website, contact staff@essentialtremor.org or call toll-free 1-888-387-3667. Your donation is tax-deductible to the degree allowed by law.
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Research Studies
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Recruiting persons with undiagnosed tremor
Click here for details.
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Now Recruiting for NIH 1-Octanol Study
20 volunteers needed!
The National Institutes of Health (NIH) is in need of 20 volunteers who have ET in their arms to participate in studies of 1-Octanol. Participants need to be otherwise healthy. The study will involve a screening visit and a 4-day hospital admission. NIH will pay for all travel-related expenses. For more information go to http://patientinfo.ninds.nih.gov/Tremor.aspx
Click here for details.
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Trace R&D Center, University of Wisconsin-Madison
The Trace Center is a research and development center at the University of Wisconsin-Madison. We are looking for individuals who have movement disorders of their arms or hands to participate in a study for evaluating usability of information technology such as hand held computers and public kiosks. You will be asked to visit Trace on two different occasions. You will be compensated at a rate of $15.00/hour and will receive a $50 bonus for completing both sessions. You will also be paid for transportation costs incurred traveling to or from study location (bus fare, car mileage at 33 cents per mile or local taxi service if required). Travel time is included in the hourly rate.
If you are interested and would like to help us in making information technology devices that are more accessible, please contact Carolyn Shaffer 608-263-1156 or at shaffer@grace.wisc.edu. E-mail us for details.
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ET Community Events
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April 25 - Chicago West Suburban Area Community Awareness Event
"Learning About Essential Tremor: Diagnosis and Treatment Options" presentation by local physicians. Watch this site for updated details.
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May 1 - Tacoma, WA Area Community Awareness Event
"Learning About Essential Tremor: Diagnosis and Treatment Options" presentation by local physicians. Watch this site for updated details.
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Support Groups
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Nov 20 - Roanoke VA
The Roanoke, VA Evening ET Support Group invites you to its monthly meeting held on the third Thursday of each month beginning at 7 p.m. We meet in the offices of the Roanoke Neurological Associates,4431 Starkey Road, Roanoke. For more information, contact Mike Hopkins, 540-721-2087 or email, mhop856@aol.com. E-mail us for details.
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Nov 20 - Wichita, KS
The Wichita, Kansas ET Support Group invites you to our next meeting. We meet the third Thursday of each month at 7:00 p.m. at the Wesley Rehabiliation Hospital, 8338 West 13th Street, Wichita, KS. For more infomration contact Jo or Marvin Daniels at jo.daniels@cox.net or 316-260-7958 or Jacque Thompson at thompjb@sbcglobal.net or 316-722-6696. E-mail us for details.
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Nov 21 - Roanoke VA
The Roanoke, VA Daytime ET Support Group invites you to its monthly meeting held on the third Friday of each month beginning at 10 a.m. We meet in the church parlor of the Grandin Court Baptist Church, 2660 Brambleton Ave. SW, Roanoke. For more information, contact Mike Hopkins, 540-721-2087 or email, mhop856@aol.com. E-mail us for details.
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Nov 22 - Atlanta, GA
The Atlanta Area ET Support Group invites you to our next meeting Saturday, November 22nd from 10:30 a.m. until 12:00 Noon. We meet in the 3rd floor conference room of the Wesley Woods Health Center, 1841 Clifton Road NE, Atlanta, GA 30329. For more information, contact Lynn at slross@emory.edu or 404-728-6300. E-mail us for details.
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November 22 - Atlanta, GA
The Atlanta Area ET Support Group invites you to our November meeting Saturday, November 22nd from 10:30 a.m. until 12:00 Noon. We meet in the 3rd floor conference room of the Wesley Woods Health Center, 1841 Clifton Road NE, Atlanta, GA 30329. For more information, contact Lynn at slross@emory.edu or 404-728-6300. E-mail us for details.
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Nov 24 - Chesapeake Beach, MD
NEW Evening SG - new day and time! The Chesapeake Beach, MD SG invites you to our monthly meeting at 7:00 p.m. on the 4th Monday of each month at the All Saints Episcopal Church, 100 Lower Marlboro, Sunderland, MD 20689. For more information contact Linda at 410-535-3509 or lhcoty@comcast.net or Melinda at 410-535-2429 or melindacollins2006@yahoo.com. E-mail us for details.
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Watertown, NY
The new Watertown, NY ET Support Group invites you to our next meeting from 7:00 p.m. to 9:00 p.m. in Conference 1 (next to the caferteria) of Samaritan Medical Center, 830 Washington Street, Watertown, NY. For more information, contact Nina at 315-232-2373 or ninakid@twcny.rr.com. E-mail us for details.
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Cedar Rapids, IA ET Support Group
The Cedar Rapids ET Support Group asks you to please watch this website for announcement of our next meeting. We are temporarily not meeting due to recent flooding. Call 319-377-5931 or email for details.
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Dec 4 - Asheville, NC
The Asheville Area ET Support Group invites you to their next meeting. We meet the first Thursday of each month from September through May beggining at 6 p.m. in the Seymour Auditorium at Care Partners off Sweeten Creek Road in Asheville, NC. Our next meeting is Sept. 4, 2008. For more information contact Howard Henze, 828-687-2356 or bchhenze@bellsouth.net. E-mail us for details.
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Dec 5 - Lexington, VA
The Lexington, VA ET Support Group invites you to our monthly meeting on the first Friday of each month at 10:00 a.m. Our meetings are held at the Kendal at Lexington, 160 Kendal Drive, Lexington 24450. For more information contact Mary Barker, 540-463-7269 or barkernutmeg@kalexres.kendal.org. E-mail us for details.
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Dec 6 - Saginaw, MI
You are invited to attend the monthly meeting of the ET Support Group of Northeastern Michigan on the first Saturday of each month at 10:00 a.m. We will meet in the first floor conference room of St. Mary's Ambulatory Care Center, 4955 Towne Centre, Saginaw, MI 48604. Your family members and friends are welcome to come along. For more information, contact Carol at 989-799-5413. Call 989-799-5413 for details.
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Dec 7 - Columbus, OH ET Support Group
The Columbus, Ohio ET Support Group invites you to its next meeting on the first Sunday of each month from 2:30 p.m. to 4:20 p.m. at the Hilliard United Methodist Churchm Fellowship Hall, 5445 Scioto Darby Road, Hilliard, OH 43026 (enter through the glass door at the rear of the building). All are welcome! For more information, contact David Williamson at 614-921-8711 or docwmson@sbcglobal.net. E-mail us for details.
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Dec 8 - Baltimore, MD
You are invited to the Baltimore, MD Area ET Support Group monthly meeting. We meet the second Monday of each month (with the exception of December) from 6:00 p.m. to 7:00 p.m. Join us at the Parkinson's and Movement Disorders Center of Maryland, 8180 Lark Brown Road, Suite 101, Elkridge, MD 21075. For more information, contact Alle Cyhan at 410-303-7660 or artsyalle@gmail.com. E-mail us for details.
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Dec 9 - Stanford, CA
Please join us for the Stanford CA ET Support Group meeting the second Tuesday of each month, beginning at 6:30 p.m. at Standford Hospital, main floor CRC, conference room # HH141. For more information contact Lois Sumner, 650-328-2998. E-mail us for details.
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Dec 10 - NEW Middleton, WI
The NEW Middleton WI ET Support Group invites you to our monthly meeting on on the second Wednesday of each month at the Middleton Senior Center, 7448 Hubbard Avenue, Middleton 53562. For more information, contact Joyce Montgomery at 608-662-9882 or jmrm@tds.net. E-mail us for details.
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Dec 10 - Lynchburg, VA
Day Meeting Group. You are invited to the Lynchburg VA ET Support Group meeting the second Wednesday of each month beginning at 2:00 p.m. Our meeting is held in the Craft Room located in the Main Building of the Summit at Wyndhurst, 1400 Enterprise Drive, Lynchburg. For more information, contact Norma Jean McGhee at 434-525-4160 or email, cmcghee2@verizon.net. E-mail us for details.
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Dec 10 - Prince Frederick, MD
The Prince Frederick, MD Day SG invites you to our monthly meeting 10:00 a.m., the second Wednesday of each month at the Calvert Pines Senior Center, Prince Frederick, MD. For more information contact Linda at 410-535-3509 or lhcoty@comcast.net or Melinda at 410-535-2429 or melindacollins2006@yahoo.com. E-mail us for details.
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Dec 13 - Northern Colorado
DBSers speak of their experiences.
The Northern Colorado ET Support Group invites you to our next meeting. We meet the 2nd Saturday of each month from 9:00 a.m. to 11:00 a.m. at the McKee Wellness Center, 2000 N Boise, Loveland. All ET sufferers, as well as their supporting partners are encouraged to attend. For more information, contact Hugh Beckham at 970-586-6931 or merryhugh@msn.com. E-mail us for details.
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Dec 14- Cincinnati / Dayton, OH
The Cincinnati/Dayton Area ET Support Group invites you to its next meeting on the second Sunday of each month from 2 to 4 p.m. at Sycamore Hospital on Leiter Road in Miamisburg. Anytone with ET, their families or caregivers are invited. Parking is free and no reservations are needed. For more information, in Dayton, contact Norma at normad@woh.rr.com or 937-433-0153, or in Cincinnati, contact Arlene at arlene.rosen@gmail.com or 513-791-5546. E-mail us for details.
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Dec 15th - Richmond, VA
The Richmond, VA ET Support Group invites you to its next meeting, our 'Holiday Hoopla' beginning at 6:30 p.m. at the Tuckhoe Area Library, 1901 Starling Drive, Richmond 23229. For more information, contact Diana Campbell by phone, 804-556-2345 or email, ET.RichmondVA@yahoo.com. E-mail us for details.
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Dec 15 - Lynchburg, VA
You are invited to the Lynchburg VA ET Support Group monthly meeting on the third Monday of each month beginning at 6:30 p.m. Our meeting is held at the Fort Avenue Church of Christ, 1132 Sandusky Drive, Lynchburg. For more information, contact Terry Houck at 434-525-6085 or email, terryhouck@webtv.net. E-mail us for details.
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Dec 15- Aiken, SC
The Aiken, SC ET Support Group invites you to attend our monthly meetings. We meet the 3rd Monday of each month, September through June at Saint Paul Lutheran Church, 961 Trail Ridge Road, Aiken, SC 29803. For more information, contact William Rundorff at 803-641-0393 or bandjrundorff@gforcecable.com. Call 803-641-0393 or email for details.
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Dec 18 - Falls Church, VA
New Meeting Location - Guest Speaker: Sairyn Leber! The Falls Church VA ET Support Group invites you to their next meeting on Thursday,
December 18, 2008 at 7:30 p.m. We will meet at TYSONS-PIMMIT REGIONAL LIBRARY, 7584 Leesburg Pike, Falls Church, VA. For more information, contact Karen Schroeder at 703-243-1969 or kschroeder06@comcast.net. E-mail us for details.
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Dec 20 - San Ramon, CA
You are invited to attend the Essential Tremor Support Group Meeting on the 3rd Saturday of each month in the Blackhawk A & B conference room of the San Ramon Regional Medical Center, 6001 Norris Canyon Road, San Ramon, CA 94583. Park in south parking lot near MRI and enter through the glass doors marked "Birthing Ctr". Please call to confirm or for more information contact Sharon Alexander, 925-487-5706 or email, galexplor@comcast.net. E-mail us for details.
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Dec 20 - Albuquerque, NM
You are invited to join the Albuquerque NM ET Support Group for its regular monthly meeting held the 3rd Saturday of each month at 10:00 a.m. in the Aspen Room of the The Palo Duro Senior Center, 5221 Palo Duro NE, Albuquerque. The center is located one block north of Comanche, east of San Mateo. For more information contact Winnifred at 505-345-3003. E-mail us for details.
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Roswell, GA
The Roswell, GA ET Support Group inivtes you to their next meeting at 1:30 p.m. in the Roswell Senior Community Center, 1250 Warsaw Road, Roswell, GA 30076. For more information, contact Lou Ann Kraus, RN at 770-993-1906 or lkraus@ssnorthfulton.org. E-mail us for details.
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Wilmington, NC
The Wilmington, NC ET Support Group invites you to their monthly meetings. We meet the 4th Thursday of each month at New Hanover Senior Center, 2222 S. College Road, Wilmington, NC 28403. For more information contact Tony Homcy at 910-452-1634 or athomcy@bellsouth.net. E-mail us for details.
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Jan 14 - Tustin CA Support Group
The Tustin, CA ET Support Group invites you to its next meeting featuring presentations by Dr. Devin Binder, neurosurgeon and Laurie Baumgartner, nurse practioner on Wednesday, January 14th from 6:00 p.m. to 7:30 p.m. at the Tustin Senior Center, 200 C Street, Tustin, CA. For more information, contact Larry Meyers, PhD., 714-838-3153 or lmeyersbox@aol.com.
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Silver Spring, MD
The NEW Silver Spring, MD Support Group invites you to our next meeting at 10:30 a.m. Join us in Clubhouse #1 of Leisure World, 3300 N Leisure World Blvd., Silver Spring, MD 20906. For more information, contact Dan at 301-384-1139 or danmiller100@comcast.net. E-mail us for details.
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Landsdowne, VA ET Support Group
NEW Leisure World of VA ET Support Group! The Landsdowne, Virginia Essential Tremor Support Group invites you to its next meeting. We will meet at Leisure World of Virginia Clubhouse, 19375 Magnolia Grove Square, Landsdowne, VA 20176. For more information contact Jeanne Sweeney at 703-609-6614 or jeanne498@gmail.com. E-mail us for details.
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Jan 21 - NEW Reston, VA Support Group
The innaugural meeting of the NEW Reston, Virginia ET Support Group will be held at 6:00 p.m. on Wednesday, January 21st at the Reston Community Center, 2310 Colts Neck Road, Reston, VA 20191. For more information, contact Barry Schafer at 703-476-6226 or email, vis0849@verizon.net.
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Leesburg, FL
NEW Support Group. For more information on our next meeting, contact Ruth Green at 352-787-8398 or et-lakeport@msn.com. E-mail us for details.
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