Links

The links on this page will take you to additional sources of information, including online pharmacies.

• help raise funds for the ietf
• charitable donation library on the net
• surgical procedures
• support groups
• other neurology sites
• general healthcare information links
• disability information
• research information

Help Raise Funds for the IETF

• www.amazon.com
  For every dollar you spend on purchases at Amazon.com, when you click on the link here, the IETF receives a portion of the money as a charitable contribution.
• www.Drugstore.com
  Receive special discounts and offers on merchandise each month. As an affiliate, for every dollar you spend, the IETF receives a portion of the money as a charitable contribution.
• www.Hertz.com
  As an affiliate, for every dollar you spend with Hertz car rental, the IETF receives a portion of the money as a charitable contribution.

Charitable Donation Library on the Net

Raising funds and awareness for ET through charitable contribution sites. Please visit and make a pledge on behalf of yourself, a friend or a family member.

• www.charityamerica.com
  A donation resource for nonprofits and their supporters.
• www.donoredge.org
  Provides information to donors about individual charitable organizations

Surgical Procedures

• www.brainnurse.com
  Assistance for patients who have had DBS surgery
• www.elekta.com
  Gamma knife surgery
• www.IRSA.org
  The International RadioSurgery Association
• www.medtronic.com/patients/tremor.html
  EssentialTremor.ActivaDBS.com - Information about Activa DBS Tremor Control Therapy

Support Groups

The IETF support group for parents of children with ET has moved its discussion board – to right here on the IETF Web site. Click here to check it out.

• http://fr.groups.yahoo.com/group/tremblement_essentiel/
  Il existe un groupe de discussion en langue Française.
• http://groups.yahoo.com/group/DBSsurgery/
  Discussion of deep brain stimulation surgical procedures
• http://groups.yahoo.com/group/ettremor/
  International support group based in Australia.
• http://www.tremor.org.uk
  Excellent ET site based in Great Britain.
• tremblement_essentiel-subscribe@yahoogroupes.fr
  Vous pouvez vous inscrire à ce groupe en envoyant simplement un courriel.

Other Neurology Sites

• University of Maryland Medicine
  An excellent collection of links to tremor-related informational Web sites.
• www.dana.org
  Charles A. Dana Foundation – Dana Alliance for Brain Initiatives
• www.healthlink.mcw.edu
  Information in neurological disorders from physicians of the Medical College of Wisconsin.
• www.neurology.jwatch.org
  Journal Watch Neurology regularly combs 180 medical journals for important findings in Neurology and is edited and reviewed by more than 80 physicians.
• www.neurologychannel.com
  The internet's most comprehensive resource for neurology-related consumer healthcare.
• www.parkinson.org
  National Parkinson Foundation, Inc.
• www.sfn.org
  Advancing the understanding of the brain and the nervous system by bringing together scientists of diverse backgrounds, by facilitating the integration of research directed at all levels of biological organization, and by encouraging translational research and the application of new scientific knowledge to develop improved disease treatments and cures.
• www.torticollis.org
  Excellent information about cervical dystonia, also known as spasmodic torticollis (ST), a relatively rare disorder in which the head twists and turns into abnormal postures as a result of painful, uncontrollable muscular contractions.
• www.wemove.org
  The Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activites on the Web.

General Healthcare Information Links

• Movement Disorder Society
  An international professional society invested in the research and care of patients with movement disorders,
• The Partnership for Prescription Assistance
  The Partnership for Prescription Assistance provides an easy on-line method of signing up for assistance in paying for more than 2,500 medications. The cost of medication is free or nearly free for most people.
• www.aircharitynetwork.org
  Charitable medical air transportation services
• www.alyshia.com/opca
  Information on the condition known as OPCA - Olivopontocerebellar Atrophy
• www.bcia.org
  For some individuals, stress can temporarily cause an increase in tremor symptoms. Some individuals with tremor have found that biofeedback has helped in the reduction of stress. For a biofeedback specialist near you, visit this site and search by area. It is advisable that you call the office to find out if the biofeedback specialist has experience treating patients with tremor before you schedule your appointment.
• www.care.com
  Comprehensive listing of resources for every family member, from elderly parents to children, and even pets.
• www.caregiverslibrary.org
  The National Caregivers Library is one of the most extensive online libraries for caregivers that exist today.
• www.cms.hhs.gov
  Medicare and Medicaid information
• www.diseasesconditions.com
  Directory of all diseases and conditions information
• www.drkoop.com
  Empowering consumers to better manage their personal health with comprehensive, trusted information.
• www.drugs.com
  A convenient, unbiased and reliable source of drug information. Of particular interest is the drug interaction program, the Pill Identification wizard and image library, as well as drug information listings presented at both professional and consumer levels.
• www.familiesusa.org
  Help for caregivers
• www.fightingfatigue.org
  Resource site for Chronic Fatigue Syndrome, Fibromyalgia and IC disease
• www.geneticalliance.org
  Genetic Alliance increases the capacity of genetic advocacy groups to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.
• www.globalrx.com
  International pharmacy providing USA approved medications worldwide.
• www.health.gov/nhic/pubs/default.htm
  Access to a national health observances annual planning guide, federal health information centers and clearinghouses with Web links and telephone numbers for federal health information and referral services, by topic – plus toll-free numbers for health information, including both federal and nonprofit organization, again by topic.
• www.healthfinder.gov
  Your guide to reliable health information provided by the government.
• www.hhs.gov
  Medical Records Privacy Act
• www.infomedsearch.com
  InfoMed Search provides medical-health information for physicians, healthcare professionals, legal professionals, patients and consumers. The site also proves InfoMedLinks where they search the Internet, read articles and select links for medical-health topics and their sub-categories (e.g., Treatment).
• www.medicalbooks.com
  Largest medical, technical and scientific online bookstore. They have more than 90,000 titles of books, multimedia and databases in stock.
• www.medicineresearchcenter.com
  Help with reducing the cost of prescription drugs.
• www.nfcacares.org
  National Family Caregivers Association
• www.nhgri.nih.gov
  National Human Genome Research Institute's Online Genetic Glossary
• www.orthostatictremor.org
  One individual diagnosed with orthostatic tremor provides personal experience and information
• www.PatientTravel.org
  No-cost, long-distance medical air travel is available from the national Patient Travel Helpline. Phone: 1-800-296-1217.
• www.selfhelpnetwork.wichita.edu
  Center for Community Support and Research, Self-Help Network of Kansas
• www.specialneedsfamilyfun.com
  Special Needs Family Fun offers family fun and special needs resources to enhance the fun and quality of family life for families with disabilities.
• www.toxtown.nlm.nih.gov
  A consumer health website developed by The National Library of Medicine at the National Institutes of Health, this is comprehensive coverage of more than 600 health topics, nightly newswire updates, interactive tutorials with sound and pictures, medical encyclopedia, drug information, directories of health facilities and professionals – and more.
• www.vitamins-nutrition.org
  The Vitamins and Nutrition Center provides hundreds of articles on vitamins and nutrition, handy vitamin profiles and information on the latest vitamin and nutrition research breakthroughs.
• www.webmd.com

Disability Information

• Caregiver Products.com
  Weighted eating utensils, cups, glasses, etc.
• www.capperkc.org
  Assistive Technology Devices
• www.disabilityresources.org
  Disability Resources, Inc. is a national, nonprofit organization, based on Long Island, N.Y., which has provided information about resources for independent living since the inception of its award-winning print newsletter, Disability Resources Monthly, in 1993.
• www.ed.gov/about/offices/list/osers/nidrr/index.html
  National Institute on Disability and Rehabilitation Research (NIDRR)
  400 Maryland Avenue, SW
  Washington, DC 20202-2572
  Phone: (202) 205-8134
  TTY: (202) 205-9433
  (NIDRR) conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment and independent living of disabled individuals of all ages.
• www.naric.com
  The National Rehabilitation Information Center
  Serving the Nation's Disability Community (NARIC)
  1010 Wayne Avenue, Suite 800
  Silver Spring, MD 20910
  Phone: (800) 346-2742 or (301) 562-2400
  TTD: (301) 495-5626
  Fax: (301) 562-2401
  NARIC is one of the most information-intensive, yet easy-to-use WWW sites of rehabilitation and disability information on the internet. NARIC's literature collection, which also includes commercially published books, journal articles and audiovisuals, averages around 200 new documents per month. They offer listings of events and organizations as well as facts and figures.
• www.ncmedical.com
  Functional Solutions - Weighted utensils. Can also be reached at: NCM Consumer Products Division / San Jose, Calif. / 1-800-235-7054

Research Information

• www.ciscrp.org
  Center for Information and Study on Clinical Research Participation (CISCRP)- If you are thinking about joining a clinical study, learn how to evaluate that study, what qeustions to ask before participating, and what your rights are as a participant.
• www.clinicaltrials.gov
  ClinicalTrials.gov provides patients, family members and members of the public easy and free information on clinical studies for a wide range of diseases and conditions.
• www.ninds.nih.gov
  This site provides access to the most recent biomedical research publications concerning human subjects.