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home » links
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Links
The links on this page will take you to additional sources of information, including online pharmacies.
Help Raise Funds for the IETF
 www.amazon.com
For every dollar you spend on purchases at Amazon.com, when you click on the link here, the IETF receives a portion of the money as a charitable contribution.- www.Drugstore.com
Receive special discounts and offers on merchandise each month. As an affiliate, for every dollar you spend, the IETF receives a portion of the money as a charitable contribution.
- www.Hertz.com
As an affiliate, for every dollar you spend with Hertz car rental, the IETF receives a portion of the money as a charitable contribution.
Charitable Donation Library on the Net
Raising funds and awareness for ET through charitable contribution sites. Please visit and make a pledge on behalf of yourself, a friend or a family member.
Surgical Procedures
Support Groups
The IETF support group for parents of children with ET has moved its discussion board – to right here on the IETF Web site. Click here to check it out.
Other Neurology Sites
- University of Maryland Medicine
An excellent collection of links to tremor-related informational Web sites.
- www.dana.org
Charles A. Dana Foundation – Dana Alliance for Brain Initiatives
- www.healthlink.mcw.edu
Information in neurological disorders from physicians of the Medical College of Wisconsin.
- www.neurology.jwatch.org
Journal Watch Neurology regularly combs 180 medical journals for important findings in Neurology and is edited and reviewed by more than 80 physicians.
- www.neurologychannel.com
The internet's most comprehensive resource for neurology-related consumer healthcare.
- www.parkinson.org
National Parkinson Foundation, Inc.
- www.sfn.org
Advancing the understanding of the brain and the nervous system by bringing together scientists of diverse backgrounds, by facilitating the integration of research directed at all levels of biological organization, and by encouraging translational research and the application of new scientific knowledge to develop improved disease treatments and cures.
- www.torticollis.org
Excellent information about cervical dystonia, also known as spasmodic torticollis (ST), a relatively rare disorder in which the head twists and turns into abnormal postures as a result of painful, uncontrollable muscular contractions.
- www.wemove.org
The Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activites on the Web.
General Healthcare Information Links
- www.aircharitynetwork.org
Charitable medical air transportation services
- www.alyshia.com/opca
Information on the condition known as OPCA - Olivopontocerebellar Atrophy
- www.bcia.org
For some individuals, stress can temporarily cause an increase in tremor symptoms. Some individuals with tremor have found that biofeedback has helped in the reduction of stress. For a biofeedback specialist near you, visit this site and search by area. It is advisable that you call the office to find out if the biofeedback specialist has experience treating patients with tremor before you schedule your appointment.
- www.care.com
Comprehensive listing of resources for every family member, from elderly parents to children, and even pets.
- www.caregiverslibrary.org
The National Caregivers Library is one of the most extensive online libraries for caregivers that exist today.
- www.cms.hhs.gov
Medicare and Medicaid information
- www.diseasesconditions.com
Directory of all diseases and conditions information
- www.drkoop.com
Empowering consumers to better manage their personal health with comprehensive, trusted information.
- www.drugs.com
A convenient, unbiased and reliable source of drug information. Of particular interest is the drug interaction program, the Pill Identification wizard and image library, as well as drug information listings presented at both professional and consumer levels.
- www.familiesusa.org
Help for caregivers
- www.fightingfatigue.org
Resource site for Chronic Fatigue Syndrome, Fibromyalgia and IC disease
- www.geneticalliance.org
Genetic Alliance increases the capacity of genetic advocacy groups to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.
- www.globalrx.com
International pharmacy providing USA approved medications worldwide.
- www.health.gov/nhic/pubs/default.htm
Access to a national health observances annual planning guide, federal health information centers and clearinghouses with Web links and telephone numbers for federal health information and referral services, by topic – plus toll-free numbers for health information, including both federal and nonprofit organization, again by topic.
 www.healthfinder.gov
Your guide to reliable health information provided by the government.- www.hhs.gov
Medical Records Privacy Act
- www.medicalbooks.com
Largest medical, technical and scientific online bookstore. They have more than 90,000 titles of books, multimedia and databases in stock.
- www.medicineresearchcenter.com
Help with reducing the cost of prescription drugs.
- www.nfcacares.org
National Family Caregivers Association
- www.nhgri.nih.gov
National Human Genome Research Institute's Online Genetic Glossary
- www.orthostatictremor.org
One individual diagnosed with orthostatic tremor provides personal experience and information
- www.PatientTravel.org
No-cost, long-distance medical air travel is available from the national Patient Travel Helpline. Phone: 1-800-296-1217.
- www.selfhelpnetwork.wichita.edu
Center for Community Support and Research, Self-Help Network of Kansas
- www.specialneedsfamilyfun.com
Special Needs Family Fun offers family fun and special needs resources to enhance the fun and quality of family life for families with disabilities.
- www.toxtown.nlm.nih.gov
A consumer health website developed by The National Library of Medicine at the National Institutes of Health, this is comprehensive coverage of more than 600 health topics, nightly newswire updates, interactive tutorials with sound and pictures, medical encyclopedia, drug information, directories of health facilities and professionals – and more.
- www.vitamins-nutrition.org
The Vitamins and Nutrition Center provides hundreds of articles on vitamins and nutrition, handy vitamin profiles and information on the latest vitamin and nutrition research breakthroughs.
- www.webmd.com
Disability Information
- www.capperkc.org
Assistive Technology Devices
- www.disabilityresources.org
Disability Resources, Inc. is a national, nonprofit organization, based on Long Island, N.Y., which has provided information about resources for independent living since the inception of its award-winning print newsletter, Disability Resources Monthly, in 1993.
- www.ed.gov/about/offices/list/osers/nidrr/index.html
National Institute on Disability and Rehabilitation Research (NIDRR)
400 Maryland Avenue, SW
Washington, DC 20202-2572
Phone: (202) 205-8134
TTY: (202) 205-9433
(NIDRR) conducts comprehensive and coordinated programs of research and related activities to maximize the full inclusion, social integration, employment and independent living of disabled individuals of all ages.
- www.naric.com
The National Rehabilitation Information Center
Serving the Nation's Disability Community (NARIC)
1010 Wayne Avenue, Suite 800
Silver Spring, MD 20910
Phone: (800) 346-2742 or (301) 562-2400
TTD: (301) 495-5626
Fax: (301) 562-2401
NARIC is one of the most information-intensive, yet easy-to-use WWW sites of rehabilitation and disability information on the internet. NARIC's literature collection, which also includes commercially published books, journal articles and audiovisuals, averages around 200 new documents per month. They offer listings of events and organizations as well as facts and figures.
- www.ncmedical.com
Functional Solutions - Weighted utensils. Can also be reached at: NCM Consumer Products Division / San Jose, Calif. / 1-800-235-7054
Research Information
- www.clinicaltrials.gov
ClinicalTrials.gov provides patients, family members and members of the public easy and free information on clinical studies for a wide range of diseases and conditions.
- www.ninds.nih.gov
This site provides access to the most recent biomedical research publications concerning human subjects.
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Research Studies
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Do you have an undiagnosed tremor?
DO YOU HAVE AN UNDIAGNOSED TREMOR?
Would you like to be involved in a research study for the purpose of examining an investigational diagnostic that may be able to differentiate types of tremor?
To find out more, go to:
http://www.aleseres.com/poet/index.asp
Click here for details.
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Now Recruiting for Research Study
QUEST Research Institute is enrolling people with moderate to severe essential tremor (ET) for an investigational research study at their metro Detroit site. This is a 2 week study assessing an investigational drug for ET. Interested people with moderate to severe essential tremor, please call 888-QUEST-24 or visit www.questri.com. If you qualify ot participate in this study, you will have to go through study-related procedurs. Compensation for your time and travel will apply.
Call 888-QUEST-24 or click here for details.
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Now Recruiting for NIH 1-Octanol Study
The National Institutes of Health (NIH) is in need of 20 volunteers who have ET in their arms to participate in studies of 1-Octanol. Participants need to be otherwise healthy. The study will involve a screening visit and a 4-day hospital admission. NIH will pay for all travel-related expenses. For more information go to http://patientinfo.ninds.nih.gov/Tremor.aspx
Click here for details.
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Trace R&D Center, University of Wisconsin-Madison
The Trace Center is a research and development center at the University of Wisconsin-Madison. We are looking for individuals who have movement disorders of their arms or hands to participate in a study for evaluating usability of information technology such as hand held computers and public kiosks. You will be asked to visit Trace on two different occasions. You will be compensated at a rate of $15.00/hour and will receive a $50 bonus for completing both sessions. You will also be paid for transportation costs incurred traveling to or from study location (bus fare, car mileage at 33 cents per mile or local taxi service if required). Travel time is included in the hourly rate.
If you are interested and would like to help us in making information technology devices that are more accessible, please contact Carolyn Shaffer.
Call 608-263-1156 or email for details.
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ET Community Events
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Sept 20 - Nashville, TN ET Community Awareness & Education Event
The IETF invites you to attend a community education event on Saturday, September 20, 2008 from 9:00 a.m. to 12:00 noon at the Scarritt Bennett -Laskey, 1008 19th Avenue South, Nashville, TN 37212. Drs. Fenna Phibbs, neurologist and Joseph Neimat, neurosurgeon both with Vanderbilt University Medical Center will present the latest information on the diagnosis and treatment of ET. Check-in begins at 8:00 a.m. Parking is free and refrehments served. For more information call 888-387-3667 or email dee@essentialtremor.org.
Call 888-387-3667 or email for details.
Register Now
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Oct 11 - Aurora IL ET Community Education Event
The IETF invites you to the Aurora, IL area community awareness event, "Learning About Essential Tremor: Diagnosis and Treatment Options" on Saturday, October 11th at 9:00 a.m. at the Rush-Copley Heart Institute, 2088 Ogden Avenue, Aurora, IL 60504. Presentations by Dr. S. Sani. For more information, contact the IETF, 888-387-3667 or dee@essentialtremor.org. Register online or by calling the IETF.
Call 888-387-3667 or email for details.
Register Now
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Oct 14 - Buffalo, NY ET Community Education Event
The IETF invites you to the Buffalo, NY area community education event on Tuesday, October 14th at 6:00 p.m. "Learning About Essential Tremor: Diagnosis and Treatment Options" with presentations by Drs. Robert Plunkett Kimberly Trinidad at the Garden Place Hotell, 6615 Transit Road, Williamsville, NY 14221. For more information, contact the IETF at 888-387-3667 or dee@essentialtremor.org. Register online or by calling the IETF.
Call 888-387-3667 or email for details.
Register Now
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Support Groups
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Sept 4 - Asheville NC Area ET Suppot Group
The Asheville Area ET Support Group invites you to their next meeting. We meet the first Thursday of each month from September through May beggining at 6 p.m. in the Seymour Auditorium at Care Partners off Sweeten Creek Road in Asheville, NC. Our next meeting is Sept. 4, 2008. For more information contact Howard Henze, 828-687-2356 or bchhenze@bellsouth.net.
Call 828-687-2356 or email for details.
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Sept 4 - Silver Spring, MD ET Support Group
The NEW Silver Spring, MD Support Group invites you to our next meeting at 10:30 a.m. Join us in Clubhouse #1 of Leisure World, 3300 N Leisure World Blvd., Silver Spring, MD 20906. For more information, contact Dan at 301-384-1139 or danmiller100@comcast.net.
Call 301-384-1139 or email for details.
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Sept 5 - Saginaw, MI Support Group
You are invited to attend the monthly meeting of the ET Support Group of Northeastern Michigan on the first Saturday of each month at 10:00 a.m. We will meet in the first floor conference room of St. Mary's Ambulatory Care Center, 4955 Towne Centre, Saginaw, MI 48604. Your family members and friends are welcome to come along. For more information, contact Carol at 989-799-5413.
Call 989-799-5413 or email for details.
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September 5 - Lexington, VA ET Support Group
The Lexington, VA ET Support Group invites you to our monthly meeting on the first Friday of each month at 10:00 a.m. Our meetings are held at the Kendal at Lexington, 160 Kendal Drive, Lexington 24450. For more information contact Mary Barker, 540-463-7269 or barkernutmeg@kalexres.kendal.org.
Call 540-463-7269 or email for details.
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Sept 6 - Morgantown WV ET Support Group
Please join the Morgantown ET Support Group on the First Saturday of each month at 10 a.m. in Room 9101 of the WVU Health Sciences Center, 1 Medical Center Drive, Morgantown WV 26506. For more information contact Jack at 304-292-5257 pr jackpavone@yahoo.com or Debi at 304-293-2343 or dhoward@hsc.wvu.edu.
Call 304-292-5257 or email for details.
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Sept 8 - Baltimore Area ET Support Group
You are invited to the Baltimore, MD Area ET Support Group monthly meeting. We meet the second Monday of each month (with the exception of December) from 6:00 p.m. to 7:00 p.m. Join us at the Parkinson's and Movement Disorders Center of Maryland, 8180 Lark Brown Road, Suite 101, Elkridge, MD 21075. For more information, contact Alle Cyhan at 410-303-7660 or artsyalle@gmail.com.
Call 410-303-7660 or email for details.
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Sept 9 - Stanford CA ET Support Group
Please join us for the Stanford CA ET Support Group meeting the second Tuesday of each month, beginning at 6:30 p.m. at Standford Hospital, main floor CRC, conference room # HH141. For more information contact Lois Sumner, 650-328-2998.
Call 650-328-2998 or email for details.
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Sept 10 - NEW Middleton WI Support Group
The NEW Middleton WI ET Support Group invites you to our first meeting on Wednesday, September 10, 2008 at the Middleton Senior Center, 7448 Hubbard Avenue, Middleton 53562. For more information, contact Joyce Montgomery at 608-662-9882 or jmrm@tds.net.
Call 608-662-9882 or email for details.
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Sept 10- Lynchburg ET Support Group
You are invited to the Lynchburg VA ET Support Group meeting the second Wednesday of each month beginning at 2:00 p.m. Our meeting is held in the Craft Room located in the Main Building of the Summit at Wyndhurst, 1400 Enterprise Drive, Lynchburg. For more information, contact Norma Jean McGhee at 434-525-4160 or email, cmcghee2@verizon.net.
Call 434-525-4160 or email for details.
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Sept 10 - Prince Frederick, MD ET Support Group
The Prince Frederick, MD SG invites you to our monthly meeting 10:00 a.m., the second Wednesday of each month at the Calvert Pines Senior Center, Prince Frederick, MD. For more information contact Linda at 410-535-3509 or lhcoty@comcast.net or Melinda at 410-535-2429 or melindacollins2006@yahoo.com.
Call 410-535-3509 or email for details.
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Sept 13 - Northern Colorado ET Support Group
The Northern Colorado ET Support Group invites you to our next meeting. We meet the 2nd Saturday of each month from 9:00 a.m. to 11:00 a.m. at the McKee Wellness Center, 2000 N Boise, Loveland. All ET sufferers, as well as their supporting partners are encouraged to attend. For more information, contact Hugh Beckham at 970-586-6931 or merryhugh@msn.com.
Call 970-586-6931 or email for details.
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Sept 14 - Cincinnati / Dayton ET Support Group
The Cincinnati/Dayton Area ET Support Group invites you to its next meeting on the second Sunday of each month from 2 to 4 p.m. at Sycamore Hospital on Leiter Road in Miamisburg. Anytone with ET, their families or caregivers are invited. Parking is free and no reservations are needed. For more information, in Dayton, contact Norma at normad@woh.rr.com or 937-433-0153, or in Cincinnati, contact Arlene at arlene.rosen@gmail.com or 513-791-5546.
Call 937-433-0153 or email for details.
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Sept 15 - Watertown, NY ET Support
The new Watertown, NY ET Support Group invites you to its first meeting on Monday, September 15, 2008 from 7:00 p.m. to 9:00 p.m. in Conference 1 (next to the caferteria) of Samaritan Medical Center, 830 Washington Street, Watertown, NY. For more information, contact Nina at 315-232-2373 or ninakid@twcny.rr.com.
Call 315-232-2373 or email for details.
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Sept 15 - Aiken, SC ET Support Group
The Aiken, SC ET Support Group invites you to attend our monthly meetings. We meet the 3rd Monday of each month, September through June at Saint Paul Lutheran Church, 961 Trail Ridge Road, Aiken, SC 29803. For more information, contact William Rundorff at 803-641-0393 or bandjrundorff@gforcecable.com.
Call 803-641-0393 or email for details.
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Sept 16 - Lynchburg ET Support Group
You are invited to the Lynchburg VA ET Support Group monthly meeting on the third Monday of each month beginning at 6:30 p.m. Our meeting is held at the Fort Avenue Church of Christ, 1132 Sandusky Drive, Lynchburg. For more information, contact Terry Houck at 434-525-6085 or email, terryhouck@webtv.net.
Call 434-525-6086 or email for details.
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Sept 18 - Roanoke VA ET Support Group
The Roanoke, VA Evening ET Support Group invites you to its monthly meeting held on the third Thursday of each month beginning at 7 p.m. We meet in the offices of the Roanoke Neurological Associates,4431 Starkey Road, Roanoke. For more information, contact Mike Hopkins, 540-721-2087 or email, mhop856@aol.com.
Call 540-721-2087 or email for details.
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Sept 18 - Wichita, KS Area ET Support Group
The Wichita, Kansas ET Support Group invites you to our next meeting. We meet the third Thursday of each month at 7:00 p.m. at the Wesley Rehabiliation Hospital, 8338 West 13th Street, Wichita, KS. For more infomration contact Jo or Marvin Daniels at jo.daniels@cox.net or 316-260-7958 or Jacque Thompson at thompjb@sbcglobal.net or 316-722-6696.
Call 316-260-7958 or email for details.
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Sept 19 - Roanoke VA ET Support Group
The Roanoke, VA Daytime ET Support Group invites you to its monthly meeting held on the third Friday of each month beginning at 10 a.m. We meet in the church parlor of the Grandin Court Baptist Church, 2660 Brambleton Ave. SW, Roanoke. For more information, contact Mike Hopkins, 540-721-2087 or email, mhop856@aol.com.
Call 540-721-2087 or email for details.
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Sept 20 - San Ramon ET Support Group
You are invited to attend the Essential Tremor Support Group Meeting on the 3rd Saturday of each month in the Blackhawk A & B conference room of the San Ramon Regional Medical Center, 6001 Norris Canyon Road, San Ramon, CA 94583. Park in south parking lot near MRI and enter through the glass doors marked "Birthing Ctr". Please call to confirm or for more information contact Sharon Alexander, 925-487-5706 or email, galexplor@comcast.net.
Call 925-487-5706 or email for details.
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Sept 20 - Albuquerque ET Support Group
You are invited to join the Albuquerque NM ET Support Group for its regular monthly meeting held the 3rd Saturday of each month at 10:00 a.m. in the Aspen Room of the The Palo Duro Senior Center, 5221 Palo Duro NE, Albuquerque. The center is located one block north of Comanche, east of San Mateo. For more information contact Winnifred at 505-345-3003.
Call 505-345-3003 or email for details.
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Sept 20 - Los Angeles ET Support Group
The Los Angeles, CA ET Support Group will meet on Saturday, September 20, 2008 at the VA Medical Center, 11301 Wilshire Boulevard. For more information, contact either Bob at 310-276-6875 or bob@kribs.com or Alta at 818-700-1876 or alta.rudomin@sbcgloba.net.
Call 310-276-6875 or email for details.
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Sept 22 - Chesapeake Beach, MD ET Support Group
The Chesapeake Beach, MD SG invites you to our monthly meeting at 7:00 p.m. on the 4th Monday of each month at the All Saints Episcopal Church, 100 Lower Marlboro, Sunderland, MD 20689. For more information contact Linda at 410-535-3509 or lhcoty@comcast.net or Melinda at 410-535-2429 or melindacollins2006@yahoo.com.
Call 410-535-3509 or email for details.
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Sept 24 - Landsdowne, VA ET Support Group
The Landsdowne, Virginia Essential Tremor Support Group invites you to its innaugural meeting at 2:00 p.m. on Wednesday, September 24, 2008. We will meet at Leisure World of Virginia Clubhouse, 19375 Magnolia Grove Square, Landsdowne, VA 20176. For more information contact Jeanne Sweeney at 703-609-6614 or jeanne498@gmail.com.
Call 703-609-6614 or email for details.
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Sept 25 - Wilmington NC Support Group
The Wilmington, NC ET Support Group invites you to their monthly meetings. We meet the 4th Thursday of each month at New Hanover Senior Center, 2222 S. College Road, Wilmington, NC 28403. For more information contact Tony Homcy at 910-452-1634 or athomcy@bellsouth.net.
Call 910-452-1634 or email for details.
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Sept 25 - Falls Church VA ET Support Group
The Falls Church VA ET Support Group invites you to their next meeting on Thursday, September 25, 2008 at 7:30 p.m. We will meet at TYSONS-PIMMIT REGIONAL LIBRARY, 7584 Leesburg Pike, Falls Church, VA. For more information, contact Karen Schroeder at 703-243-1969 or kschroeder06@comcast.net.
Call 703-243-1969 or email for details.
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Sept 30 - Richmond VA ET Support Group Meeting
The Richmond, VA ET Support Group invites you to its next meeting beginning at 6:30 p.m. at the Tuckhoe Area Library, 1901 Starling Drive, Richmond 23229. For more information, contact Diana Campbell by phone, 804-556-2345 or email, ET.RichmondVA@yahoo.com.
Call 804-556-2345 or email for details.
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Oct 7 - Roswell, GA ET Support Group
The Roswell, GA ET Support Group inivtes you to their next meeting at 1:30 p.m. in the Roswell Senior Community Center, 1250 Warsaw Road, Roswell, GA 30076. For more information, contact Lou Ann Kraus, RN at 770-993-1906 or lkraus@ssnorthfulton.org.
Call 404-593-3668 or email for details.
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Oct 8 - Tustin CA ET Support Group
The Tustin, CA Support Group invites you to our next meeting on October 8, 2008 from 6:00 p.m. to 7:30 p.m. Our guest speakers are Dr, Christopher Duma discussing brain surgery for ET and Dr. Janice Chance presenting, "What is ET and what can we do about it". We meet at the Tustin Senior Center, 200 C Street (between 1st and Main Streets, and the 55 and 5 Freeways), Tustin. For more information, contact Larry at 714-838-3153 or lmeyersbox@aol.com.
Call 714-838-3153 or email for details.
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Nov 15 - Los Angeles ET Support Group
The Los Angeles, CA ET Support Group will meet on Saturday, November 15, 2008 at the VA Medical Center, 11301 Wilshire Boulevard. For more information, contact either Bob at 310-276-6875 or bob@kribs.com or Alta at 818-700-1876 or alta.rudomin@sbcgloba.net.
Call 310-276-6875 or email for details.
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Nov 22 - Atlanta ET Support Group
The Atlanta Area ET Support Group invites you to our next meeting Saturday, November 22nd from 10:30 a.m. until 12:00 Noon. We meet in the 3rd floor conference room of the Wesley Woods Health Center, 1841 Clifton Road NE, Atlanta, GA 30329. For more information, contact Lynn at slross@emory.edu or 404-728-6300.
Call 404-728-6300 or email for details.
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November 22 - Atlanta ET Support Group
The Atlanta Area ET Support Group invites you to our November meeting Saturday, November 22nd from 10:30 a.m. until 12:00 Noon. We meet in the 3rd floor conference room of the Wesley Woods Health Center, 1841 Clifton Road NE, Atlanta, GA 30329. For more information, contact Lynn at slross@emory.edu or 404-728-6300.
Call 404-728-6300 or email for details.
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Cedar Rapids, IA ET Support Group
The Cedar Rapids ET Support Group asks you to please watch this website for announcement of our next meeting. We are temporarily not meeting due to recent flooding.
Call 319-377-5931 or email for details.
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Leesburg, FL ET Support Group
For more information on our next meeting, contact Ruth Green at 352-787-8398 or et-lakeport@msn.com.
Call 352-787-8398 or email for details.
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