Children with Essential Tremor
Children are incredibly resilient. They can accomplish the most amazing things, with a bit of determination and a lot of support from loving and caring adults. Children who are affected by essential tremor are no different. They display an amazing amount of ingenuity and will when faced with the challenges of living with essential tremor. However, children with ET are challenged in ways that are different from their peers and these differences can lead to feelings of embarrassment and frustration; two difficult emotions for children to process. Without proper guidance and support from parents, family members, teachers, and physicians, a child’s self-esteem could be severely impacted.
Here you will find a wealth of information specifically designed to help parents and other caring adults be the stabilizing factor in the life of a child who has ET.
The National Center for Learning Disabilities has a website that includes information about improving access to accommodations for students and adults with learning disabilities in school and the workplace. This includes a physical impairment.
ACT Testing Accommodations
ACT has a process in place to provide special accommodations for students with disabilities in accordance with the Americans with Disabilities Act (ADA). Students with essential tremor who are planning to take the ACT should familiarize themselves with this information and the process for receiving accommodations.
Essential Tremor in Children
By Leon S. Dure, MD and Jan Rowe, DrOT
There is clearly a lack of information regarding ET in children, which is a source of concern to parents, families, and others who come in contact with it. This article is a summary of observations concerning childhood ET that is the product of Dr. Dure’s 20 years of diagnosing and managing ET in children.
Children with Essential Tremor: Navigating Education and Life
By Dr. Keith Coffman
Essential tremor (ET) is the most common movement disorder on the planet. It is often inherited, so most children who seek medical attention for their ET usually have family members affected as well. Interestingly, since the expression of ET can be different from one person to the next, an affected child may experience a different level of impact than other family members.
Hannah was the youngest person featured in the IETF video, Essential Tremor is More than a Tremor. At 16 years old, Hannah struggled with the same things other teenage girls do: having the right hair, wearing make-up and making friends. But, her tremor added challenges that other teens don’t have. Yet, she takes it all in stride with the love and support of her family.
Joy is an amazing little girl who has work her whole (albeit short) life to help raise awareness for essential tremor in her community. She wrote a book about essential tremor, to make it easier for her to share her condition with her classmates. She’s an author, a fundraiser, and an genuinely amazing little girl.
At 13, Jack was undaunted by ET. Despite some limitations with balance and coordination, he continued to ride on bike trails and snowboards, train with weights, and target shoot. With his rugged determination, his dreams of being a LEGO designer could definitely become a reality.
Allison began noticing her tremor when she was in preschool. And at times, the challenges she faced seemed overwhelming. A bully only added to her sadness and feelings of isolation. But with the support and guidance of her devoted parents, she was able to find (and exceed) in her natural talents, and regained her sense of self-worth.
For some children, like Ryan, all they know is life with tremor. As far as he knew, the shake has always been there. Having essential tremor never prevented him from being an athletic child who enjoyed music, art, and reading. In other words, a normal kid.
Children’s Activity Book
This cute activity and coloring sheet aims to help elementary school children better understand essential tremor. With brain teasers and pictures to color, it makes learning about ET kind of fun. (To print: 2-sided on 11×17 paper)
Children with Essential Tremor: A Guide for Parents and Other Caring Adults
This guide is divided into two sections; one for parents, and one of teachers. Although, anyone who comes into contact with a child who is affected by essential tremor would benefit from the information provided in this handy guide. Please download a copy to share with friends, family and educators.
Tremor Disorders in Children: A Guide for Healthcare Providers
This guide is designed to help healthcare providers distinguish between the different conditions that can cause tremor in children, with specific details on care for those with essential tremor.
Wrightslaw: From Emotions to Advocacy: The Special Education Survival Guide
Whether you are new to special education or an experienced advocate,this book is truly a guide that can help you understand and navigate your way through special education system and become your child’s #1 advocate.