Tremor Gram April 2013

Focused ultrasound study begins Phase III
The third phase of this study will be a multi-center, double-blinded, randomized control trial. Four study sites have been selected to participate. Read more about this interesting research.

Survey participation request
The Biodesign program at Stanford University comprises engineers and physicians who recognize the lack of effective treatment options for those with essential tremor. In an effort to identify the needs of those affected, the program is conducting a brief, 10-question online survey. Results from this survey will help researchers identify device options that might meet the needs of those having trouble managing everyday tasks. Participate in this survey.

A charming way to raise awareness
IETF member Siobhan O’Reilly says she has struggled with essential tremor for as long as she can remember. But she refuses to let ET stand in the way of her dreams. As an Origami Owl® Independent Designer, she creates personalized lockets for her clients. Now, she’s combining her passion for jewelry with her drive to expand ET awareness.

Read more and see more samples of her work or visit O’Reilly’s website.

LiftLabs update
We received many calls and emails about LiftWare, a new utensil for those with tremor. The product will be available to the public later this spring. In an effort to fund manufacturing; LiftLabs will begin taking orders at a discounted rate through Kickstarter (a crowd-funding platform). You may learn more at their website or learn about other assistive devices here.

LiftLabs has also updated the Lift Pulse app for tracking your tremor. They now have the app available for Android. Android users can download the app in the Google Play store, and iPhone users can find it in iTunes. People have really found the app to be useful in tracking their tremor. Better still, it’s free and available on most phones, so feel free to spread the word to anyone you think could use it.