Tremor Gram June 2013
Essential Tremor Patient Registry
The IETF is pleased to announce our own disease registry! This important program will help unite patients, families, clinicians, researchers, and the global community to improve our understanding of essential tremor and to advance research activity. Help researchers help you: Join our patient registry! Learn more.
Lend Your Voice to the NIH BRAIN Initiative
With nearly 100 billion neurons and 100 trillion connections, the human brain remains one of the greatest mysteries in science and one of the greatest challenges in medicine. The National Institutes of Health’s (NIH) Brain Research through Advancing Innovative Neurotechnologies (BRAIN) Initiative has been tasked with figuring how and why the brain works as it does; looking to fill major gaps in our current understanding. You, the public, are invited to sit-in (via phone or in person) on the planning meetings and express why it’s important to study the brain and find the cause of neurological conditions like essential tremor. Read more.
IETF Announces 2013 Research Grant Awards
The IETF is delighted to award three grants, totaling $85,000, to researchers investigating essential tremor. Follow the links below to learn more about how your research donations are being utilized to further our understanding of essential tremor.
- Dr. Holly Shill and Dr. Charles Adler – Essential Tremor Brain Bank at the Arizona Study of Aging and Neurodegenerative Disorders
- Dr. Erika Augustine – Clinical Characteristics of Essential Tremor and Enhanced Physiologic Tremor in Childhood
- Dr. Carlo Menon – An innovative Dynamic Damping Exoskeleton Approach to Essential Tremor Treatment