Tremor Gram – August 2017

Your Research Donations Make a Difference

ET has no cure. Since there is no medication specifically designed for ET, people struggle to find effective treatments. Some feel like any and all medications are thrown at them in an attempt to find something that might work. Anything that might work. Your research donation could make the difference between critical research being funded or turned away.

If only we understood the cause of ET, then new, tailored treatments could be developed. Cutting-edge researchers are ready to search for not only new but smarter treatment options in hopes of making even the simplest of life’s tasks easy again.

Each year researchers with an interest in studying the various aspects of essential tremor are encouraged to submit scientific proposals for grant funding from the IETF. To date, your research donations have provided more than $750,000 to fund numerous promising studies. Every donation, no matter the size, counts. Help us keep research moving forward!

Please donate

 

New IETF-Funded Research

Each year, researchers with an interest in studying the various aspects of ET are encouraged to submit scientific proposals for grant funding from the IETF. This year, The IETF will fund two research grants this year.

Below are the new research projects.

  • Elucidating the roles of the Ca2+-activated ion channels in essential tremor – Read More
  • Genome-Wide Copy Number Variations and Essential Tremor: A High-Density Genotyping Study- Read more.

To date, your research donations have provided more than $750,000 to fund numerous promising studies. Grant funding was provided by donors, people directly affected by this life-altering condition, like you.

 

Appropriations Bill Update for Health Funding

Capitol Building Washington DThe House Appropriations Committee recently completed its work on all of their 12 appropriations bills including the Labor Health and Human Services (HHS) appropriations bill.The Labor HHS bill includes a total of $77.6 billion for HHS, a decrease of $542 million below last year’s enacted level and $14.5 billion above the President’s budget request.

The bill provides a total of $35.2 billion for National Institutes of Health, an increase of $1.1 billion above the fiscal year 2017 enacted level, meaning more funding for initiatives for neurological disorders like ET.

The bill provides increases for several specific, critical research initiatives, including:

  • $1.8 billion, a $400 million increase, for Alzheimer’s disease research, and
  • $336 million, a $76 million increase, for the Brain Research through Application of Innovative Neurotechnologies (BRAIN) initiative. The Committee specifically recommended the National Institute of the Neurological Disorders and Stroke (NINDS) and the National Institute of Mental Health (NIMH) evenly split the $86 million authorized by the 21st Century Cure Act and made available as part of this appropriations bill for the BRAIN Initiative.
  • The Committee also stated its support for the supports the NIH Adolescent Brain and Cognitive Development (ABCD) Study.

A summary of this bill can be found here. The IETF and the American Brain Coalition will continue monitoring this issue as the Senate begins their work on FY 2018 appropriations.