Tremor Gram – June 2019

IETF Raises Awareness, Provides Support in Hartford

It was one of our largest educational events! On June 1 the IETF traveled to Hartford, CT to host 225 attendees at an Essential Tremor Education Forum held at the Hartford Hospital Education and Resource Center.

Dr. Duarte Machado, co-director of the Chase Family Movement Disorders Center at Hartford Healthcare Ayer Neuroscience Institute, was our main speaker. He discussed treatment options and the diagnostic process for ET. Amy Pace, OTR/L, provided a presentation on coping tips for people with ET.

Several times a year, the IETF hosts educational events like this one in large cities in the United States. The goal is to educate patients and caregivers, while connecting them to healthcare providers and research/technology groups who are invested in providing support for people with ET. Watch a short video on our website of one of our past ET Education Forums.

Our next ET Education Forum is scheduled for Saturday, September 14 in St. Louis, MO, at the Hilton St. Louis Frontenac. Registration is now open for this free event.

 

Shining a Light on Essential Tremor Research

 

Research is the best hope for a better tomorrow for people living with ET and those who care about them. That’s why the International Essential Tremor Foundation (IETF) is shining a light on essential tremor research.

Since 2001, the IETF has provided funding to help move ET research forward. Each year, the IETF awards research grants to projects that address “the nosology, etiology, pathogenesis and other topics relevant to essential tremor.” Our goal is to stimulate inquiry into ET and provide support for projects that give promise and hope for a world without ET. Thanks to the generosity of the ET community, the IETF has awarded over $800,000 to date in research grants.

You can help shine a light on ET with your special gift during the 2019 IETF Research Campaign in July. You can also help spread the word by sharing research information on your social media channels and reading up on the latest research information on our website.

Watch your mailbox for a special letter with our “Shine a Light” logo coming in July. It will include a donation response card that will allow you to get involved in supporting essential tremor research.

It takes all of us to keep the light of hope shining strong. Please join the IETF in our work to improve treatments and find a cure to help people with ET.

 

Congratulations to Our Fall Scholarship Winners!
The IETF’s scholarship committee has announced the fall 2019 Catherine Rice Scholarship recipients.

Scholarship Art Hat

Congratulations to:

  • Elizabeth Carroll, University of Massachusetts, Amherst
  • Anna Easley, William Carey University, Hattiesburg, MS
  • Alyssa Jones, Trinity University, San Antonio, TX
  • Madison Young, Arkansas Tech University, Russellville, AR

The IETF’s scholarship program started in 2015 to recognize the achievements of students dealing with essential tremor. It was named to honor longtime IETF Executive Director Catherine Rice who was passionate about providing support for students with ET.

Eligibility requirements include:

  • Official diagnosis of essential tremor
  • A 2.5 GPA or higher
  • Community service and leadership skills
  • Acceptance to a post-secondary licensed, accredited educational institution or trade school
  • Submission of a 500-word essay on “How has ET affected my life?”

Applications for spring 2020 scholarships are due October 31, 2019. Application forms and scholarship criteria are available on our website.