Tremor Gram – November 2018
Support Students with ET This GivingTuesday
Students with essential tremor will be the focus of the International Essential Tremor Foundation’s (IETF) 2018 GivingTuesday campaign on November 27.
GivingTuesday is a global day dedicated to giving back by volunteering, donating and supporting organizations that do good in the community and the world. All donationsreceived this GivingTuesday (that’s 100%) will go to the Catherine Rice Scholarship Program (named in honor of a former IETF executive director).
Each semester, the IETF awards four $1,000 scholarships to post-high school students who have essential tremor. The scholarships represent hope for the future, and provide support to these students during a pivotal time in their lives.
Our scholarship recipients give voice to essential tremor and speak out about their condition. Some hope to become scientists or doctors, or to work in a field where they can help others, just as they have been helped. Read some of our past scholarship recipients’ stories of hope and resilience on our Tremor Talk blog.
Our 2018 GivingTuesday goal is to raise $8,000 to fund all of our 2019 scholarships.
Help us help our young people with essential tremor this GivingTuesday by making a donation.
Feeling All Alone with Your Essential Tremor?
Some days are better than others, but on the really bad days people with essential tremor just need a listening ear and someone who really understands what they are going through. That’s why theInternational Essential Tremor Foundation established its ET Support Group program.
ET Support Groups exist in 30 states, and 8 countries outside the U.S. In all, there are 67 support groups that gather once a month, every other month or every quarter to learn, connect and grow. More than anything, the members say they feel a sense of connectedness and understanding. They no longer feel alone.
Here are some comments from support group attendees:
“Even though I have a very busy schedule and only am able to attend half the ET support group meetings, I look forward to every one of them. I always come away with new information and a feeling of hope. The camaraderie of the group is wonderful, and our discussion topics are interesting and helpful.”
“My experience with the support group has made me more willing to be public about my tremors, to educate people about ET.”
Check to see if a support group exists near you. Or start your own! The IETF will help you get set up and provide support along the way. Click here to learn more.
Tips for Holiday Travel
The holidays are near and this means many people will be traveling to be with family and friends during the next couple of months. However, getting through airport security can be especially difficult when living with essential tremor. Below are tips to make your travel more fun and less stressful.
- Give yourself plenty of time to arrive so you don’t rush through security. Stress can exacerbate your tremor.
- When packing medications, the Transportation Security Administration (TSA) allows larger amounts of medically necessary liquids, gels, and aerosols in reasonable quantities for your trip, but you must declare them to TSA officers at the checkpoint for inspection.
- What items can you carry on? Check this online list in advance.
- Be prepared to empty your pockets of loose change, keys and your cell phone. Carry as little in your pockets as possible.
- Have your ID and travel documents in your hand.
- Consider carrying a medical card to discreetly communicate about special needs to security officers. The TSA has a notification card available for free download at www.tsa.gov.
You can talk to a representative through TSA Cares, a toll-free hotline at 1.855.787.2227, to get more information about screening that is relevant to your specific disability or condition.