Tremor Gram – October 2017

IETF Joins Movement Disorders Coalition
The International Essential Tremor Foundation has recently partnered with the Movement Disorders Policy Coalition (MDPC). Through the help of other neurological organizations and nonprofits, we will advocate at the federal, state, and health plan levels for key health reforms that increase access and personalized care for patients with movement disorders.

Movement disorders impact millions of people across the United States and often burden patients with high medical costs. Friends and family of these patients provide extensive and uncompensated care, even while they face health problems and expenses of their own. Fortunately, innovative therapies now offer hope for patients, their families, and society at large that debilitating movement disorders can one day be cured.

By producing educational materials, hosting events, and leading direct advocacy efforts, MDPC will support patient-centric healthcare delivery models and the physician-patient relationship. Through the legislative and regulatory processes, MDPC will advocate for reforms to utilization management practices that block patient access, including:

  • Prior authorizations
  • Step-therapy
  • Specialty-tiers with high co-insurance
  • Non-medical switching

For more information about the MDPC, visit www.movementdisorderspolicy.org.

 

Informed Series TV Awareness Projects
The IETF has been invited to participate in the TV production Informed Series to educate the public about ET and to raise awareness for the IETF in a public television format. Informed has produced a 5-minute corporate profile with detailed information documenting ET issues and an educational message to promote awareness for the IETF.

The project will also include the production of one 3-5 minute educational segment produced as a standalone short-form documentary for distribution to public television stations nationwide. The segment will broadcast this fall at each public television station’s discretion, with an estimated viewership and reach of 60 million households.Along with the documentary profile, Informed will provide the production of a one-minute educational commercial segment used for network distribution. The segment will be broadcast once at each public television station’s discretion, with an estimated viewership and reach of 60 million households.

Along with the documentary profile, Informed will provide the production of a one-minute educational commercial segment used for network distribution. The segment will be broadcast once at prime time in over 84 million homes via MSNBC, CNBC, CNN or an equivalent network. The commercial will also air 400 times in many of the top 100 Direct Marketing Areas during peak and prime time on networks.

This fall keep an eye out for this project to air on your local public television network. In the meantime, you can view the corporate profile on our website here: https://youtu.be/MTLt-ZuN21s.

 

Request a Free Info Packet
The IETF is happy to provide educational information to all who request it, at no charge. Learn more about this neurological condition including common medications, coping skills, surgical options, and more. Request a free packet for you, your family or friends so everyone can learn more about ET. Request a packet here.