About the IETF

Reviewed logo from Greater KC Community FoundationFounded in 1988 as a 501(c)3 non-profit organization, the International Essential Tremor Foundation (IETF) is guided by an executive board of directors, a medical advisory board, and an executive director with a staff of two. The organization consists of patients, physicians, educators, health care workers, parents, relatives, friends, and volunteers.

Our Mission
The International Essential Tremor Foundation provides hope to the essential tremor (ET) community worldwide through awareness, education, support, and research.

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Board of Directors

The Board of Directors is the governing body of the IETF. Current members include:

Kelly Lyons, PhD – President

Shari Finsilver – Vice President

Paul Rodden – Secretary

Mitch Fiser, CPA, CFP – Treasurer

Melissa Armitage, MPA – Director

Paula Nauer, MD – Director

Patrick Reidy – Director

Heath Steele – Director

Patrick McCartney – Executive Director

Medical Advisory Board

The IETF Medical Advisory Board is comprised of physicians and researchers who specialize in essential tremor and other movement disorders. They advise the organization and review medical materials.

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IETF Scholarships

Each semester, the IETF will award up to four $1,000 scholarships to qualified post-high school students of all ages, to lessen the burden of higher education. The scholarship can be used for supplies, books or tuition at licensed, accredited institutions of higher education (including trade schools) and are paid directly to the educational institution.

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Strategic Plan

The IETF is always looking toward the future in its mission to provide hope to the ET community through awareness, education, support and research. Take a look at the foundation’s plan for the next three to five years.

Strategic Plan

Annual Reports

These reports chart our progress toward the mission of the Foundation. The IETF fiscal year runs from April 1 through March 31.

2011-2012  2012-2013  2013-2014  2014-2015  2015-2016 2016-2017 2017-2018

Guidestar

logo-exchange-gold_128x94GuideStar is the world’s largest source of information on nonprofit organizations.The IETF is committed to transparency and being a good steward of the funds donated to our cause. Please review our Guidestar listing to see our financial reports, form 990s, and other important information.

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Affiliations

We are proud to be a member, participant and/or partner of the following organizations:

American Brain Coalition | CIBR | Coalition for Clinical Trials Awareness | Coalition for Health Funding | Community Health Charities | Cures Acceleration Network (CAN) | Genetic Alliance | Midwest Neurological CoalitionGlobal Genes RARE Foundation Alliance | National Institute of Neurological Disorders and Stroke | National Council of Nonprofits | One Mind | Tremor Action Network