Russ got involved with the IETF after his wife Arlene was diagnosed with ET and began to take a variety of medications. He was concerned about what she was experiencing, but with limited experience and knowledge he believed he could only be ineptly supportive.
After attending support group meetings in Dayton, Ohio, he began to better understand what Arlene was experiencing. He was especially struck by the high level of emotional support and help with coping skills offered during the meetings. As an Executive Board member, he hopes to further strengthen these support groups to help as many people as possible.
In addition, as a board member Russ brings his strength as an individual with a Master’s degree in Social Work administration, and 25 years of experience working in the not-for-profit setting as a volunteer as well as a staff person working with boards of directors and committees, planning, management and networking.
Russ wants to help the IETF accomplish its mission to improve the quality of the lives of those afflicted with ET. He thinks it important to continue supporting those with ET in ways that improve self-esteem, and physical and mental health.