Essential Tremor in the News
The topic of essential tremor is in the news more than most realize. Below you will find a collection of news articles and reports from around the world all discussing some aspect of essential tremor, including research. When reading any research findings, remember that in order for research to be considered valid, it must be repeated and come to the same conclusions.
If there is a news article about essential tremor that is not listed here, please forward the headline with a link, to our communications department at firstname.lastname@example.org.
IETF is Taking Applications for Fall Scholarships
Each semester, the IETF awards four $1,000 scholarships to graduating seniors or current college students to support their higher education goals. The current application period is for fall 2018 scholarships. The deadline is May 1, 2018.
IETF is Accepting Proposals for Grants Relevant to Essential Tremor
The International Essential Tremor Foundation (IETF) is pleased to announce proposals are now being accepted from researchers whose investigation addresses the nosology, etiology, pathogenesis, treatment or other topics relevant to essential tremor (ET). The submission deadline for proposals is February 28, 2018. The announcement of the award will take place on July 1, 2018 with the funding period to begin that month.
Chris Kennedy’s Mild Hereditary Tremor No Big Deal
Chicago Sun-Times Opinion – My paternal grandmother and my mother both had essential familial tremor. I developed it around the same time my mother did. I saw a neurologist. When he handed me a pamphlet from the International Essential Tremor Foundation, I saw that the head of it was a distant cousin on my paternal grandfather’s side. I had a nice conversation with him and he said that he’d had it for 25 years and it had never changed.
International Essential Tremor Foundation Seeks Grant Proposals
SAT Press News – The International Essential Tremor Foundation (IETF) is pleased to announce proposals are now being accepted from researchers whose investigation addresses the nosology, etiology, pathogenesis, treatment or other topics relevant to essential tremor (ET). The submission deadline for proposals is February 28, 2017. The announcement of the award will take place on July 1, 2017, with the funding period to begin that month.
International Essential Tremor Foundation to Facilitate Educational Forum in Boca Raton
PRweb – The International Essential Tremor Foundation (IETF) will host a free educational forum in Boca Raton, Fla., on the life-altering neurological condition called essential tremor (ET). The seminar will take place on Saturday, March 11 at Boca Raton Marriott at Boca Center located at 5150 Town Center Circle in Boca Raton, Fla. The program will run from 9 a.m. to 12 p.m., with check-in beginning at 8 a.m. The event is sponsored by Cala Health and Medtronic. More information, including driving directions and event registration, is available by phone at 888.387.3667 or https://www.essentialtremor.org/seminars.
FDA approves brain implant to help reduce Parkinson’s disease and essential tremor symptoms
GoMedClinic.com – The U.S. Food and Drug Administration today approved the Brio Neurostimulation System, an implantable deep brain stimulation device to help reduce the symptoms of Parkinson’s disease and essential tremor, a movement disorder that is one of the most common causes of tremors.
Medicare Establishes Payment Level for Treatment of Tremor
Focused Ultrasound Foundation – The Centers for Medicare and Medicaid Services (CMS) has set the institutional payment for focused ultrasound treatment for essential tremor at approximately $10,000. After two years CMS will reevaluate the payment level based on the actual costs of treatments performed during that interval.
Obama signs 21st Century Cures Act
By Juliet Eilperin and Carolyn Y. Johnson, The Washington Post – Paying tribute to both bipartisanship and his vice president — who was galvanized by his own son’s death to change the way the United States combats cancer — President Obama signed legislation Tuesday that aims to increase funding for medical research, speed the development and approval of experimental treatments and overhaul federal policy on mental health care.
New Therapies: Hope for Those With Movement Disorders
By Ejaz A. Shamim, M.D., U.S. News and World Report – If you hold your hands in front of your face and examine them closely, you can see them shake ever so slightly. That’s normal. Everyone has some degree of this involuntary trembling, known as a tremor. But for some people, because of changes in the connections in the brain caused by aging, injury, stroke or other neurological disorders – such as multiple sclerosis or Parkinson’s disease – the tremor can become so severe as to leave the person unable to function.
Elbit Imaging Ltd. Announces That INSIGHTEC’s Exablate Neuro System Has Been Approved by CMS for U.S. Coverage for the Treatment of Essential Tremor
EconoTimes – Elbit Imaging Ltd. announced today that it was informed by INSIGHTEC Ltd. that the Centers for Medicare and Medicaid Services assigned a status to the Exablate Neuro treatment for Essential Tremor, moving it from a non-payable status indicator to one that allows reimbursement.
The CMS decision is one of several steps toward gaining appropriate reimbursement for MRgFUS for essential tremor. This needs to be followed by CMS regional offices approval to the reimbursement for the Exablate Neuro treatment, for their patients.
Robert Wood Johnson University Hospital (RWJUH) first facility to use the St. Jude Medical Infinity DBS System
MyCentralJersey.com – Robert Wood Johnson University Hospital (RWJUH) in New Brunswick in partnership with Rutgers Robert Wood Johnson Medical School is the first facility in New Jersey and Pennsylvania to use the St. Jude Medical Infinity Deep Brain Stimulation (DBS) System, an advanced treatment option recently approved by the U.S. Food and Drug Administration (FDA) for patients with Parkinson’s disease and essential tremor.
Essential tremor sufferers needed for groundbreaking study
WireService.ca – Researchers at the Montreal Neurological Institute and Hospital of McGill University and Kiel University in Germany have led a large international collaborative study that sheds new light on the genetics behind essential tremor, in a paper published in Brain Journal on Oct. 21, 2016. It is the largest study on essential tremor to date.
August/Sept 2016, Neurology Now – Mary Bartron, 64, says living with essential tremor is isolating. She hopes to find support from other people living with this condition. “For most of my life, I have been blessed with good health. I’ve also been blessed with a challenging and satisfying career as an information systems specialist at West Virginia University Health Science Center in Morgantown. Then, at age 55, I faced a new challenge: Accepting a diagnosis from my neurologist of essential tremor …”
FDA approves first MRI-guided focused ultrasound device to treat essential tremor
FDA.gov – The U.S. Food and Drug Administration today approved the first focused ultrasound device to treat essential tremor in patients who have not responded to medication. ExAblate Neuro uses magnetic resonance (MR) images taken during the procedure to deliver focused ultrasound to destroy brain tissue in a tiny area thought to be responsible for causing tremors.
Why are my hands shaky? Tremors are a common malady
By Kristen Anderson, Missoulian – For Ken, a cup of coffee is better if it’s half-full. That’s because his shaky hands would spill a full cup. He also has trouble with handwriting, and sometimes playing his guitar is difficult. All this can be frustrating for Ken, who is 61. But he’s used to it – he’s had a condition called essential tremor since he was about 12 years old.
Not All Tremors are Created Equal
Dr. David Carll, Bay Observer – Tremors, sometimes called shakes or twitches, are defined as involuntary spontaneous body part oscillations affecting any muscle group but with the most commonly involving the hands and arms. There are a wide range of causes for these movements some innocuous, some progressive and some debilitating in the long run.
Metro man has steady hands after surgery done in a different way
Meryl Lin McKean, Fox4KC – Imagine having trouble writing your name or pouring a glass of water because your hands shake so badly. That was the case for a Gardner, Kan., man. The tremors started when Mark Hansen was in junior high, and they worsened over four decades.
Exploratory Trial for Essential Tremor Treatment
AAN 2016 Conference Report by Samantha J. Peterson – In a study of 2857 patients with essential tremor, 33% received no treatment for their tremor. Of those patients who did receive treatment, 33% experienced no benefit from beta-blockers and 35% discontinued due to side effects. In addition, 17% reported no benefit from primidone and 23% discontinued due to side effects. Researchers studied the effects of SAGE-547 to evaluate a possible role in restoring GABA dysfunction.
Health Canada Approves Insightec’s Exablate Neuro System For The Treatment Of Essential Tremor
PR Newswire – INSIGHTEC, the leader in MR guided Focused Ultrasound (MRgFUS) therapy announces today that Health Canada has approved its Exablate Neuro system for the treatment of essential tremor.
Why I Don’t Want Fries With That Shake
Lori Duff, Huff/Post 50 – My name is Lori Duff, and I have Essential Tremor. Essential Tremor is a fairly common, mostly harmless neurological condition that no one has heard of, and most people never bother getting diagnosed with. I call it the shakeys. My Dad has it, too. He never bothered naming it or getting diagnosed with it, and I was almost 40 before I stumbled on a magazine ad (in a March issue, of course) which made me say, loudly and out loud, “That’s it!” in the waiting room of a doctor’s office, the only place I ever read magazines.
Solving the ancient mystery of the “Tremulous Hand of Worcester”
Mark Foster, the Northern Echo – The medieval mystery surrounding the “Tremulous Hand of Worcester” is a step closer to being solved thanks to an academic from York. The Tremulous Hand was a prolific 13th century scribe whose identity is unknown but who was given his nicknamed because of his distinctive shaky handwriting. The medieval writer has been the subject of much debate and speculation regarding his condition, but the central question always remained: what type of tremor did he have?
Raising awareness for tremors
Nicole Klauss, Daily Record – Ellensburg resident Deborah Boudreau lives with essential tremors. Her hands shake, making it often difficult to do tasks as simple as writing her name or filling out a job application. She’s had the condition for over 30 years and has been able to find ways to manage it, but she’s hoping to raise awareness of the condition locally since March is National Essential Tremor Awareness month.
Walton woman shares story of living with Essential Tremor Disorder
Helena Battipaglia, WBNG Binghamton – A Walton resident is raising awareness of a disorder that affects 10 million Americans. March is National Essential Tremor Disorder month. It’s a neurological condition that causes shaking of the hands, head, neck and voice. Elizabeth Matterazzo has suffered from the disease since she was young, and remembers the exact day she knew she was different.
Tremors not just a ‘fact of aging’
Jefferson Underwood III, M.D, Montgomery Advertiser – Sipping on a warm cup of tea, feeding yourself soup with a spoon or simply writing your name. We take being able to perform these simple tasks for granted. Now with the proper diagnosis, use of appropriate medications and new cutting edge treatments, many individuals who suffer from debilitating tremors will hopefully be able to resume that morning cup of coffee.
Essential tremor – shaking up the field
Biomedcentral.com – March is National Essential Tremor Awareness Month, a neurological movement disorder that causes unintentional shaking movements of the hands and head. In this guest blog Ariel Levy and Robert Chen, editorial board members for Journal of Clinical Movement Disorders, explain more about the disease.
Enterprise man brings awareness to Essential Tremors
DothanFirst.com – March is Essential Tremors awareness month. Essential Tremors is a condition that affects 10 million people in the United States alone. Kevin Moore suffers from the condition daily. He says one of the hardest parts of dealing with Essential Tremors is people’s lack of understanding.
Caring for the patient with essential tremor
Alison Wall, Nursing in Practice – This article discusses the prevalence and symptoms of essential tremor (ET).
Tremors no match for lifelong Savannah woodworker
Katie Martin, Savannah Morning News – At 90 years old you could say woodworking, which started as a childhood hobby for Al Schunemann, has turned into a lifelong passion. “I used to make toy sailboats and my mother had a pedal sewing machine and I’d sew the sails on the machine,” Schunemann said. “I couldn’t buy a lot of things I wanted as a kid, so I made them.”
Liftware, Stabilization Technology for Movement Disorders, Increases Focus on Charitable Giving and Introduces Price Reduction for the Holiday Season
PR Newswire – Liftware (www.liftware.com), a stabilizing handle with a selection of attachments, helps people with tremor (essential tremor, Parkinson’s and Multiple Sclerosis) eat with ease. Today, the company announced it will reduce its price for the holiday season by one hundred dollars, selling now for $195. The promotion will run through December 31, 2015.
The Truth About Essential Tremor: It’s Not Just a Case of Nerves
Stacey Colino, U.S. News & World Report – If your hand routinely shakes when you hold a drink, sign your name or tap a number into your cellphone, you may fear that you’re experiencing signs of Parkinson’s disease. But what you’re more likely to have is essential tremor, a common neurological condition that causes an involuntary, rhythmic trembling of the hands during movement but can also affect the head, voice or legs.
Robin Caron wants you to know why she is shaking
Randall Beach, New Haven Register – When Robin Caron sat down to write an email message to me (a major effort for her), she gave it this heading: “ET is more than a movie.” “Have you ever heard of ET (essential tremor)?” she asked. I had not. Nor have many other people. And that’s her point. Caron told me she had never heard of ET, either, even though she was a registered nurse, until she was diagnosed with the neurological condition in 1993.
Brain surgery pioneered in the U.S. at OHSU done live on TV
oregonlive.com – A team of three specialists will perform deep brain stimulation surgery in a patient who’s awake. The program, “Brain Surgery Live with Mental Floss,” will air at 6 p.m. Pacific Standard Time on the National Geographic Channel.
SAGE Therapeutics Announces Results From Successful Exploratory Trial in Essential Tremor
Globe Newswire – SAGE Therapeutics announced results from a successful exploratory clinical trial of SAGE-547 to evaluate the GABAA mechanism of action as a treatment for essential tremor.
INSIGHTEC Submits Pre-Market Application (PMA) for FDA Approval of Exablate Neuro for Treatment of Essential Tremor
PR Newswire – INSIGHTEC, the leader in MR guided Focused Ultrasound (MRgFUS) therapy announces today that it has submitted a pre-market approval application (PMA) to the U.S. Food and Drug Administration (FDA) for its Exablate Neuro treatment of Essential Tremor.
Defining the Treatment Gap: What Essential Tremor Patients Want That They Are Not Getting
By Elan D. Louis, Brittany Rohl, and Catherine Rice (the IETF’s former Executive Director) – A six-item patient-centeredness questionnaire was devised to assess the self-perceived needs of essential tremor (ET) patients. Patients with ET identified a broad range of issues that they felt were not addressed in their treatment; indeed, only one in 10 patients reported that they were satisfied with their care. It is hoped that patient-centered approaches will lead to improved models for the care of patients with this common chronic disease.
Comparative effectiveness of propranolol and botulinum for the treatment of essential voice tremor
nih.gov – The objective of this study was to assess the comparative effectiveness of botulinum toxin and propranolol in patients with essential vocal tremor (EVT).
The 21st Century Cures Act: Unanimously Approved
Benzinga – The 21st Century Cures provision, one of the International Essential Tremor Foundation’s top advocacy issues, will help create incentives for pharmaceutical companies to pursue medications that currently don’t exist, are difficult to develop and costly to produce, but have the potential to improve the lives of millions of Americans living with chronic diseases and disabilities, like essential tremor, a common neurological condition affecting 10 million Americans.
International Essential Tremor Foundation Releases New iPhone/Android App
The International Essential Tremor Foundation (IETF) has teamed with OrgHunter, a leading charity database resource for non-profit organizations, to release its first free iOS and Android app for essential tremor (ET) patients.
Isolated vocal tremor as a focal phenotype of essential tremor: a retrospective case review
Journal of Clinical Movement Disorders – Essential tremor (ET) is a common condition associated with significant physical and psychosocial disability. “Classic” ET is a clinical syndrome of action tremor in the upper limbs and less commonly the head, jaw, voice, trunk, or lower limbs. Current diagnostic criteria for ET exclude isolated vocal tremor (IVT). Failure to recognize IVT as a form of ET may contribute to misdiagnosis and missed opportunities for treatment.
Kenowa Hills sophomore hopes to find teens ‘like her’ by hosting fundraising walk
By Jeffrey Cunningham – GRAND RAPIDS – Allison Dyke, 16, hopes that by holding a walk to raise funds for one of her favorite charities she will be able to meet teens her age who are like her. By like her she doesn’t mean a high school sophomore who is an honor roll student, swims with the high school team, does Irish step dancing, and has won beauty pageants. By like her she means has essential tremor…
Connecticut proclaims state-wide support for National Essential Tremor Awareness Month
By Trumbull Times – As part of National Essential Tremor Awareness Month, the International Essential Tremor Foundation (IETF) is delighted to announce that Dannel Malloy, governor of Connecticut, will officially proclaim the state’s support of National Essential Tremor Awareness Month; joining others nationwide in recognizing the need to learn more and seek greater understanding of a condition that affects millions of Americans. Local IETF support group leader Helen Moser from Stratford was instrumental in securing this proclamation.
Women share their struggles of living with essential tremor disorder
Colleen Kottke, Fond du Lac Reporter – All Jean Ricigliano wants is a little respect and understanding. Diagnosed with the neurological movement disorder essential tremor (ET) in her 20s, the 37-year-old New Hampshire woman says the disorder has impacted nearly every aspect of her life.
ET in the News Archives
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