Below are research studies currently looking for participants. However, before committing to be a research subject it is important to understand the risks and benefits of participation in research studies and how the research study process works. Read the following articles for a better understanding of research participation.
Participating in Clinical Research
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The Drug Development and Approval Process
By Bertram A. Spilker, MD, PhD
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Cavion is conducting the T-CALM study to evaluate whether investigational oral drug CX-8998 reduces the severity of tremors by reducing abnormal activity in certain regions of the brain.
Wearable Device Study
Cala Health is a medical device company developing novel treatments for hand tremors. They are collaborating with leading physicians, scientists, and innovators on therapies that may reduce tremor without drugs or brain surgery. Participants will be asked to use the investigational, body worn device at home for two to four weeks to see if it may help with your hand tremor symptoms and is available for patients in California, Colorado, Washington, and Kansas.
Understanding the Genetics of Essential Tremor
Researcher’s at McGill University in Montreal, Quebec, Canada are conducting the largest genetics study of essential tremor patients ever. They require 10,000 participants affected by essential tremor. This is an international study and there is no travel involved.
Brain Activity Measurement Study Using EEG
The essential tremor research team at Columbia University, headed by Dr. Sheng-Han Kuo, is looking for people with essential tremor in the New York City area to study their brain activity using an electroencephalogram (EEG).
RULET Study of Non-affected Family Members
Yale University is spearheading an important new research initiative. This National Institute of Health (NIH) funded study aims to better understand the lifestyle habits of essential tremor (ET) families. We are calling on the assistance of the ET community and their families to help us with this new research. This is a national study.
Mount Sinai School of Medicine is conducting an essential tremor research trail to find out whether perampanel, a medication marketed for the treatment of seizures, reduces hand tremor in persons with essential tremor. This study is only open to those living in New York City.
Family Study of ET (FASET II)
Dr. Elan Louis at Yale University and Dr. Lorraine Clark at Columbia University have teamed together for an important research initiative, “FASET II” (family study of ET), to try to identify the genes that are responsible for ET. This is a national study.
GABA Imaging of Essential Tremor
Dr. Elan Louis and colleagues at Yale University in Connecticut have undertaken a new research initiative. The objective is to use new advanced imaging methods to learn what is happening in the brains of people with ET.
Brain Tissue Donation
Donate your brain tissue to science and help find the cause of and a cure for essential tremor.
Center for Information and Study on Clinical Research Participation (CISRP)
If you are thinking about joining a clinical study, learn how to evaluate that study, what questions to ask before participating, and what your rights are as a participant.
This site provides patients, family members and the public with easy access to free information on clinical studies for a wide range of conditions including ET.
National Institute of Neurological Diseases
This site provides the most recent biomedical research publication concerning human subjects.