S849

Advancing Research for Neurological Diseases Act of 2015

Senator Johnny Isakson

This act is sponsored by Senator Johnny Isakson

The IETF is calling on the ET community to reach out to your Senator’s office and ask them to cosponsor the Senate’s “Advancing Research for Neurological Diseases Act of 2015” (S. 849). Sponsored by Senator Johnny Isakson (R-GA), this act amends the Public Health Service Act to require the Centers for Disease Control and Prevention (CDC) to enhance and expand its infrastructure and activities in order to study the cause and transmission of neurological diseases, and to incorporate information obtained through those activities into a National Neurological Diseases Surveillance System.

The act requires the Department of Health and Human Services (HHS) to ensure that the Surveillance System facilitates further research on neurological diseases, including incidence rates, prevalence, and other critical demographic information. They will be looking to see if factors such as age, race, ethnicity, sex, geographic location or even family history play a role in the development of neurological disorders.  Because the data being collected is personal and private, the act also requires the HHS to ensure privacy and security protections are in place, and as stringent as the protections found under the Health Insurance Portability and Accountability (HIPPA) Act. Having a singular system to study neurological conditions will allow researchers to see patterns in the data, correlations that might otherwise go unnoticed. It allows for the sharing of critical data vital to moving research forward, yet protects an individual’s privacy.

Contact your Senator’s office today and ask them to cosponsor S. 849. Sometimes it’s better to send request to the Senator’s Legislative or Health Assistant. You can find your Senator’s staff listed here. Just locate your state and Senator, to find the appropriate email contact. Here is a sample email you can use to encourage your Senator’s support. Feel free to add, in your own words, how finding the cause and cure for your neurological condition, essential tremor, would change your life for the better. We need more Senators to sign-on and cosponsor this important legislation in order to move neurological research forward.

Please contact your Senator today!

Sample Letter              Senate Staff List

Has your Senator already signed-on as a cosponsor?

Review the list below to see which Senators have already signed-on and when. Send them a note of thanks for understanding the impact this legislation will have on your life, living with essential tremor.

Sen. Murphy, Christopher S. [D-CT]*     03/24/2015
Sen. Vitter, David [R-LA]*     03/24/2015
Sen. Casey, Robert P., Jr. [D-PA]*     03/24/2015
Sen. Wicker, Roger F. [R-MS]*     03/24/2015
Sen. Baldwin, Tammy [D-WI]     04/16/2015
Sen. Coons, Christopher A. [D-DE]     04/20/2015
Sen. Boxer, Barbara [D-CA]     05/06/2015
Sen. Cassidy, Bill [R-LA]     06/15/2015
Sen. Stabenow, Debbie [D-MI]     06/15/2015
Sen. Feinstein, Dianne [D-CA]     07/15/2015
Sen. Kirk, Mark Steven [R-IL]     07/16/2015
Sen. Menendez, Robert [D-NJ]     07/21/2015
Sen. Carper, Thomas R. [D-DE]     08/04/2015
Sen. Reed, Jack [D-RI]     11/03/2015
Sen. Markey, Edward J. [D-MA]     11/16/2015
Sen. Peters, Gary C. [D-MI]     11/19/2015
Sen. Gillibrand, Kirsten E. [D-NY]     12/01/2015
Sen. Murkowski, Lisa [R-AK]     12/08/2015
Sen. Klobuchar, Amy [D-MN]     12/15/2015

* = Original cosponsor